National Conference 6-8 May, 2019 Rydges Hotel, South Terrace, Adelaide

See more information on the ‘News’ page.

Contact: for details and Registration forms.


Shoalhaven and Wollongong Group 

Contact Anita on 0421314138 for details of the next meeting.


Friday 22 March 2019

Function Room (without steps and located near disabled toilets), Castle Hill RSL Club,

77 Castle St.,

Castle Hill.

Guest Speaker: Dr.Matthew Parker from Royal Prince Alfred Hospital

Discussion about the new Classification Criteria for Myositis and also a Q&A session.

Cost of lunch to be confirmed.

Contact Frances Colley 0409 913 408 after 10.30am /Anita Chalmers (0421 314138),  or

The venue is disability access friendly and has ample parking.

Central Coast Group – N.S.W.

A monthly coffee/morning tea meeting is held on the 2nd Friday of the month around 10am.

Lee Rowan’s Garden Centre

72 Pacific Highway, Ourimbah Ph 02 4362 2822

All family and friends are welcome.

Contact Sandra Chapman 0429 695 500 or email for further information.

Central West – N.S.W.

Contact Anita Chalmers for more information – 0421314138


Victorian Group Meetings – Mulgrave Country Club

A quarterly informal social gathering over lunch (from 12 noon) is held for the Victorian Group on the first Tuesday of March, June, September and December. Everyone is welcome.

The dates for meetings in 2019 are:

MARCH – Tuesday 5th

JUNE – Tuesday 4th

SEPTEMBER – Tuesday 3rd

DECEMBER – Tuesday 3rd

The venue is a small private room off the dining room at the Mulgrave Country Club:  Cnr Wellington Rd and Jells Rd, Mulgrave. A formal meeting structure is not followed and we sometimes have a guest speaker. We also pay for our own lunch which is ordered in the main dining area.

At the December meeting we ask everyone to bring a small $5 Kriss Cringle gift.

There’s parking underneath and around the building, although it can get very busy so arrive early.

Contact Christine Lowe 0400 613999 or Liz Sanzaro (03) 98792247 for further information.

If you live in regional areas, the following meetings may be of interest or convenient:

Western Group –  Moonee Ponds

Next meeting: TO BE ADVISED

The Legends Room

Moonee Valley Racecourse

Cnr Wilson St & Thomas St,

Moonee Ponds

Contact:  Christine Lowe 0400 613999 for information about the next get together.

Albury/Wodonga Group

Contact Marg Doherty on 02 60261801 or for details of the next meeting.

Goulburn Valley

Members in this region may also wish to join the Albury/Wodonga group  – contact Marg Doherty on 02 60261801.

Alternatively contact Christine Lowe 0400 613 999 to discuss the details of the next meeting.


Wednesday February 13, 2019 at 10am – AGM

Muscular Dystrophy Office

36/38 Henley Beach Rd,

Mile End

Will also meet on Wednesday April 10, 2019 at 10am.

Contact: Elizabeth Carter ph 84478715 or email

W. A.

Contact Susan Milobar 0411 018457 or Teri Hayes 08 9398 3250 or for information.


Brisbane Group

Next Meeting: Thursday 21 February, 2019 10am-12noon. Possibly a guest speaker.

Chermside Library Meeting Rooms (Grd Floor)

There is free parking in the grounds with extra parking downstairs with lift access to the ground floor The Library is on the corner of Hamilton Rd and Kittyhawk St, Chermside. Vehicle entry is via Kittyhawk St.

Other meeting dates for 2019:

May 16, 2019

August 15, 2019

Nov 14, 2019.

Contact:  Mary (Jill) Woods 0438 804 560  or for more details.

Gold Coast group:

Venue: de Paul Manor Estate, 1 Edmund Rice Drive, Southport (our retirement village ).

Morning tea.

Some disability parking available near main entrance.

For more information about future meetings contact Gerard Sullivan (0400 359 511) or

Bay Area Group:

Dates and venue for meetings to be confirmed. (Hervey Bay area)

Regional Co-Ordinator: Robert Anderson

At this stage for further information contact Mary (Jill) Woods 0438 804 560 or Secretary Anita on 0421 314138  if you are interested in being part of the group.


If you live in the areas of  ACT or Port Macquarie and wish to be involved with a regional group, please contact Secretary ANITA CHALMERS (mobile 0421 314 138) or

Myositis Awareness

Myositis Awareness Month is in May.

Everyone is encouraged to use social and local media to build awareness for the disease particularly with medical practitioners.