Myositis Fundraiser – Grand Ball – Perth Mid 2020  Proposed Venue Government House Ballroom

Pullman Bunker Bay Resort has come on board with us as a Sponsor with a gift donation

More information to follow. Also see the ‘News’ page

N.S.W.

Shoalhaven and Wollongong Group 

Contact Anita on 0421314138 for details of the next meeting.

SYDNEY

AGM – Thursday 5 September 2019 from 10 am – 2 pm. Function Room (without steps and located near disabled toilets), Castle Hill RSL Club, 

77 Castle St.,

Castle Hill.

Kelly Beer and possibly Prof Merrilee Needham will be in attendance to discuss the Myositis Discovery Program. There will also be an opportunity to have your saliva DNA collected for research purposes. Please RSVP to Frances to ensure we have enough test kits

Our patron Prof Sturgess will also be attending during the morning.

Contact Frances Colley 0409 913 408 after 10.30am /Anita Chalmers (0421 314138),  or mail@myositis.org.au.

The venue is disability access friendly and has ample parking.

Central Coast Group – N.S.W.

A monthly coffee/morning tea meeting is held on the 2nd Friday of the month around 10am.

Lee Rowan’s Garden Centre

72 Pacific Highway, Ourimbah Ph 02 4362 2822

All family and friends are welcome.

Contact Sandra Chapman 0429 695 500 or email sanjef1@gmail.com for further information.

Western Sydney

Next Meeting:

Wed 28 August, 2019

11am for meeting followed by lunch

Windsor Country Club

51 McQuade Ave., South Windsor

Contact: Rhonda Wooderson via mail@myositis.org.au

Central West – N.S.W.

Contact Anita Chalmers for more information – 0421314138

VIC

Victorian Group Meetings – Mulgrave Country Club

A quarterly informal social gathering over lunch (from 12 noon) is held for the Victorian Group on the first Tuesday of March, June, September and December. Everyone is welcome.

The remaining dates for meetings in 2019 are:

SEPTEMBER – Tuesday 3rd (DNA collection and guest speaker Kelly Beer)  

DECEMBER – Tuesday 3rd ( Christmas lunch)

The venue is a small private room off the dining room at the Mulgrave Country Club:  Cnr Wellington Rd and Jells Rd, Mulgrave. A formal meeting structure is not followed and we sometimes have a guest speaker. We also pay for our own lunch which is ordered in the main dining area.

At the December meeting we ask everyone to bring a small $5 Kriss Cringle gift.

There’s parking underneath and around the building, although it can get very busy so arrive early.

Contact Christine Lowe 0400 613999 or Liz Sanzaro (03) 98792247 for further information.

If you live in regional areas, the following meetings may be of interest or convenient:

Western Group –  Moonee Ponds

Next meeting: TO BE ADVISED

The Legends Room

Moonee Valley Racecourse

Cnr Wilson St & Thomas St,

Moonee Ponds

Contact:  Christine Lowe 0400 613999 for information about the next get together.

Albury/Wodonga Group

September 11, 2019 luncheon ( Saliva DNA Collection)  

Contact Marg Doherty on 02 60261801 or marg.doherty@gmx.com for details

Goulburn Valley

Members in this region may also wish to join the Albury/Wodonga group  – contact Marg Doherty on 02 60261801.

Alternatively contact Christine Lowe 0400 613 999 to discuss the details of the next meeting

S.A.

WEDNESDAY, AUGUST 28th 10.30 am. CIBOs COFFEE SHOP, BURNSIDE.

WEDNESDAY SEPTEMBER 25TH AT 10AM – Morning tea and a guest speaker. Meeting at Muscular Dystrophy headquarters, 36-38 Henley Beach Road, MILE END.

WEDNESDAY, OCTOBER 30th, 10.30 am CIBOs COFFEE SHOP, BURNSIDE.

WEDNESDAY, NOVEMBER 27th, Our last meeting for the year – Our Christmas Dinner get together (a time and place to be decided).

Contact: Elizabeth Carter ph 84478715 or email Kris.cameron1@optusnet.com.au

W.A.

1. CHRISTMAS IN JULY LUNCH

When:
Wednesday 31 July, 2019 from 12.30pm

Where:
The Herdy, Herdsman Lake Tavern
33 Herdsman Pde
Wembley
Ph 93875555
Disability accessible

What:
Christmas in July lunch $25 or $22 Seniors
Full Seniors menu also available
Check the menu at Www.herdsmantavern.com.au

Everybody welcome
RSVP Please email: mail@myositis.org.au to confirm attendance to pass to Kim Armstrong Wood.

2. PERTH RESEARCH UPDATE

When: 24 October 2019
10.30am – 1.30pm

Where: venue to be confirmed.
Transport/parking, access and location are all being considered.

Prof Merrilee Needham and her research team ( Dr Jerome Coudert, Dr Shereen Paramalingam and Kelly Beer) will provide an update on the Myositis Discovery Programme  and the various research activities which are underway in WA through the Perron Institute. The Patient Registry is also likely to be ready for launch. More information will appear about this meeting in the next KIT Newsletter of the Myositis Association later this month and, you’ll also receive an invitation closer to the date from Merrilee and Kelly Beer.

3. BUNNINGS BBQ at BALCATTA

IBMer Damian Slater and his partner Carmen have been accepted by Bunnings in Balcatta to hold a fundraising sausage sizzle on behalf of the Myositis Association – Australia Inc.

When:  Sunday 15 December, 2019

Where: Bunnings Balcatta
191 Balcatta Rd
Balcatta

Pre-Xmas is a great time for maximum sausage sales. Volunteers will be needed. More information from Damian to follow.

4. MYOSITIS BALL 2020.

Damian and Carmen are also working very hard organising an exciting fundraising Ball to be held in 2020. Lots more information to follow.

Contact Christine Lowe 0400613999 or mail@myositis.org.au for more information.

QLD

Brisbane Group

Next Meeting:

15 August, 2019  10 – 12noon

Chermside Library Meeting Rooms (Grd Floor)

There is free parking in the grounds with extra parking downstairs with lift access to the ground floor The Library is on the corner of Hamilton Rd and Kittyhawk St, Chermside. Vehicle entry is via Kittyhawk St.

Other meeting dates for 2019:

Sept 2, 2019 Note time – 1pm – 5pm Presentation about Myositis Discovery Project by Kelly Beer and ( possibly Prof Merrilee Needham)   Also Collection of saliva DNA

Nov 14, 2019. 10am – 12noon

Contact:  Mary (Jill) Woods 0438 804 560  or mgwoods67@gmail.com for more details.

Gold Coast group:

Venue: de Paul Manor Estate, 1 Edmund Rice Drive, Southport (our retirement village ).

Morning tea.

Some disability parking available near main entrance.

For more information about future meetings contact Gerard Sullivan (0400 359 511) or kellsull@ozemail.com.au

Bay Area Group:

Dates and venue for meetings to be confirmed. (Hervey Bay area)

Regional Co-Ordinator: Robert Anderson

At this stage for further information contact Mary (Jill) Woods 0438 804 560 or Secretary Anita on 0421 314138  if you are interested in being part of the group.

OTHER REGIONAL GROUPS

If you live in the areas of  ACT or Port Macquarie and wish to be involved with a regional group, please contact Secretary ANITA CHALMERS (mobile 0421 314 138) or mail@myositis.org.au.

Myositis Awareness

Myositis Awareness Month is in May.

Everyone is encouraged to use social and local media to build awareness for the disease particularly with medical practitioners.

MORE INFORMATION PLEASE CONTACT THE SECRETARY- ANITA CHALMERS (mobile 0421 314 138) or mail@myositis.org.au.

BOOKINGS ARE ESSENTIAL FOR ALL FUNCTIONS.