This is a list of websites which our members have found useful covering topics such as:

  • Myositis information available on the website of Australian or overseas organisations
  • rare disease plans and organisations
  • drug research
  • disability services.
  • Write to us at if you have other sites to share. =                                 The Myosotis Association (USA) =                            Myositis UK =        Johns Hopkins Myositis Centre (USA) =    Hospital for Special Surgery (New York, USA) -very useful site =                          National Organisation for Rare Diseases (NORD) USA =                          Rare Diseases in Australia =                                   The Voice of Rare Diseases in Europe (EURORDIS) =                             Database of clinical trials in USA/globally =                                Database of clinical trials in Australia and New Zealand =                                   Australasian Neuromuscular Network =                                Lifetec Qld =                                 I.D.E.A.S. (Information on Disability and Education Awareness Services) =                                   National Disability Services (AUS) =                    Australia’s Disability Services Hub – Services, Aids, Jobs, Social, Travel Carer’s Help =                        Accessible travel information = Travel and insurance information (USA site) = Travel tips (USA site) site) =                         Database of carers =                        Depression =                                  Muscular Dystrophy Australia (VIC) =                               Muscular Dystrophy (NSW) =                               Muscular Dystrophy (SA) =                                Muscular Dystrophy (QLD) =                                Muscular Dystrophy (WA) =                               Australasian Society of Clinical Immunology and Allergy