This is a list of websites which our members have found useful covering topics such as:

  • Myositis information available on the website of Australian or overseas organisations
  • rare disease plans and organisations
  • drug research
  • disability services.
  • Write to us at mail@myositis.org.au if you have other sites to share.

 

www.myositis.org =                                 The Myosotis Association (USA)

www.myositis.org.uk =                            Myositis UK

www.hopkinsmyositis.org/myositis =        Johns Hopkins Myositis Centre (USA)

www.hss.edu.condition-list_myositis.asp =    Hospital for Special Surgery (New York, USA) -very useful site

www.rarediseases.org =                          National Organisation for Rare Diseases (NORD) USA

www.rarevoices.org.au =                          Rare Diseases in Australia

www.eurodis.org =                                   The Voice of Rare Diseases in Europe (EURORDIS)

www.clinicaltrials.gov =                             Database of clinical trials in USA/globally

www.anzctr.org.au =                                Database of clinical trials in Australia and New Zealand

www.ann.org.au =                                   Australasian Neuromuscular Network

www.lifetec.org.au =                                Lifetec Qld

www.ideas.org.au =                                 I.D.E.A.S. (Information on Disability and Education Awareness Services)

www.nds.org.au =                                   National Disability Services (AUS)

www.disabilityonline.org.au =                    Australia’s Disability Services Hub – Services, Aids, Jobs, Social, Travel Carer’s Help

www.disabilitytravel.com =                        Accessible travel information

www.insurancewith.com/travelling-with-a-medical-condition = Travel and insurance information (USA site)

www.webmd.com/diabetes/tips-traveling = Travel tips (USA site)

www.friendshipcircle.org/blog/2012/05/03/airports-and-special-needs-travel-a-complete-guide/(USA site)

www.findacarer.com.au =                         Database of carers

www.beyondblue.org.au =                        Depression

www.mda.org.au =                                  Muscular Dystrophy Australia (VIC)

www.mdnsw.org.au =                               Muscular Dystrophy (NSW)

www.mdasa.org.au =                               Muscular Dystrophy (SA)

www.mdqld.org.au =                                Muscular Dystrophy (QLD)

www.mdwa.org.au =                                Muscular Dystrophy (WA)

www.allergy.org.au =                               Australasian Society of Clinical Immunology and Allergy