MAY IS MYOSITIS AWARENESS MONTH
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MAY IS MYOSITIS AWARENESS MONTH

May 2022 was a very busy month of gatherings, Online educational sessions, Media releases and Myositis advocacy work. Check out our roundup in the May/June Keeping In Touch Newsletter on our Resources page. National Meetings for Members on Zoom May 2022 – date in first week to be confirmed. Our patron Prof Allan Sturgess, Rheumatologist will focus…

Stephen’s Journey – Statin Induced Immune Mediated Necrotizing Myositis

Stephen’s Journey – Statin Induced Immune Mediated Necrotizing Myositis

In 2020 at the beginning of the Covid pandemic, I was in lockdown and doing lots of walking to maintain some fitness. I was also taking statins for high cholesterol.  My muscles and tendons started to hurt. I lost all strength in my legs, hips and eventually my arms and upper torso. When I stopped…

Ron’s Journey – IBM

Ron’s Journey – IBM

I used to play football and was known for my running speed but, at 43 years old I discovered I couldn’t run. That was in the mid 1990s.  Progressively over a few years I realised that I was losing strength. In 1998, I bought a pushbike to try to improve my quads. I would ride…

Mental Health Resources
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Mental Health Resources

Head to Health: A website that can help you find information on digital mental health and wellbeing resources across Australia. Types of resources include: phone services, apps, online programs, online forums and digital information resources. It has resources that address lots of different mental health challenges for different ages and backgrounds too. Website link: Welcome to Head…

Christie’s Journey – Antisynthetase Syndrome with Interstitial Lung Disease and Polymyositis

Christie’s Journey – Antisynthetase Syndrome with Interstitial Lung Disease and Polymyositis

My Myositis story began around Christmas of 2019, when I was 37 years old. I was visiting my in-laws in Bega, and we were surrounded by bushfire smoke. For the first time ever I struggled to walk from the car to the shops without sitting down. I put it down to the smoke but my…

3RD NATIONAL MYOSITIS CONFERENCE 2019
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3RD NATIONAL MYOSITIS CONFERENCE 2019

SUMMARYADELAIDE MAY 6-8, 2019 The Association’s 3rd National Conference was well attended by 112 Myositis patientsand carers. A very full and intensive program was enthusiastically received.The speakers were outstanding and our Association is so grateful for their expertise,passion for Myositis, commitment to patient support, and willingness to travel longdistances. The topics provided a strong focus…

IST NATIONAL CONFERENCE REPORT 2013
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IST NATIONAL CONFERENCE REPORT 2013

10 Year Anniversary CONFERENCE REPORT – ADELAIDE 19 – 22 August, 2013 Monday Having met informally at registration and over drinks, our President, Trevor Neumann officially welcomed around 105 attendees, to the conference over dinner at the Arkaba Hotel. Special guests, A/Prof Alan Sturgess, Patron (Rheumatologist St George Hospital Sydney),  Bob Goldberg (TMA – Washington), Prof…

2ND NATIONAL CONFERENCE SUMMARY 2016
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2ND NATIONAL CONFERENCE SUMMARY 2016

2ND NATIONAL CONFERENCE SUMMARYWOLLONGONG 10 – 12 OCTOBER, 2016 The Association’s 2nd National Conference was hugely successful with almost 90 patientsand carers enjoying the beachside location of the Novotel North Beach hotel in Wollongong.The speakers were outstanding. The topics ranged across medical information on Myositisand autoimmune diseases, review of global research, exercise and falls prevention,swallowing…

Congratulations Anita Chalmers OAM

Congratulations Anita Chalmers OAM

Our founding member of the Myositis Association Australia, Anita Chalmers, was recognised as part of the 2018 Australia Day honours with an OAM for her volunteer work for Myositis. Once diagnosed with Polymyositis in 1999, her volunteer activities in the Myositis Association began and soon extended across Australia and internationally.  She forged strong ties with the US Myositis Association. leading to access to US…