Keeping in Touch Newsletters
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Carol’s Journey – IBM
I’m a busy and relatively healthy 69 year old living on the Sunshine Coast. My husband and I have shared a very happy life together since we were 16 and 18 years of age. We live an ideal lifestyle. Our home is a wonderful apartment with ocean views and we have our 2 fantastic children…
Gadgets, Aids and Tips to Simplify Our Lives [Updated Feb 2025]
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AMAZING NEWS! The World Myositis Day – WMD – was founded!
21 September Representatives of various international myositis groups and – organizations from, Australia, Canada, Czech Republic, Germany, Sweden, The Netherlands, United Kingdom and the United States of America have jointly decided to establish the World Myositis Day. This special day will be celebrated every year on September 21 from now on. On the WMD, special…
Rachel’s Story
Rachel’s day always starts with a cocktail of medication and a good day is when she’s able to get out of bed and do some ‘normal’ daily living activities. At times, she is profoundly disabled. Days on end unable to move, sit up, stand, walk, shower or change clothes, hold a spoon to eat, hold…
Family looking out for family
Rachel’s Story Rachel’s day always starts with a cocktail of medication and a good day is when she’s able to get out of bed and do some ‘normal’ daily living activities. At times, she is profoundly disabled. Days on end unable to move, sit up, stand, walk, shower or change clothes, hold a spoon to…
Dan Macri Yoke Record Attempt
Daniel Macri will be attempting to break his own Australian Yoke record with a attempt to move 650kgs 4 meters. This event will take place on Sunday the 28th of August before the start of South West Strongman’s Judgement day event at South West Strength Gym, U2/1 Beddingfield, Street Davenport, WA 6230 Daniel Macri is an accomplished…
Accessing the NDIS Stephen Toole LAC Brotherhood of St Laurence
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Dr Jessica Day – Myositis Awareness Month 2022 – Research Initiatives Update
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Assoc. Prof. Allan Sturgess – Patron of our Association. Q & A May 2022
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Assoc. Prof. Allan Sturgess – Patron of our Association. Causes of Weakness May 2022
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Patient C’s Story – DM & Antisynthestase
My Journey. I was a happily retired 69 year old woman in around September 2019. My husband and I had just finished a half lap of Australia, from Victoria, through South Australia to the Northern Territory, then across to Western Australia and down the west coast, across the Nullarbor and home to Victoria. I was…
Grief and loss
Everyone’s experience of grief or loss is unique. You might experience all kinds of difficult and at times overwhelming emotions, and you might sometimes wonder if the sadness will ever end. This is a normal reaction to loss. Find Out More
Chronic physical illness,
anxiety and depressionLiving with or experiencing a chronic illness can result in many adjustments and changes, such as loss of independence and not being able to do all the active things you used to do or usually enjoy. Anxiety and depression are common in people with chronic physical illness. Find Out More
Hand exercises for Myositis
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Matching your exercises to the strength of your muscles: Ian Cooper, Myositis Discovery Programme
Matching your exercises to the strength of your musclesMuscle weakness in several muscle groups, is the hallmark of myositis. To help gauge any changes in your muscle function, routine monitoring of muscle strength is most likely performed every time you visit your specialist. Without sophisticated testing equipment, the most common method of assessing your individual…
Damian’s Journey – IBM
I never thought in my wildest dreams that I would be in a wheelchair.
![Gadgets, Aids and Tips to Simplify Our Lives [Updated Feb 2025]](https://myositis.org.au/wp-content/uploads/2022/04/Gadgets-Aidsr-768x495.jpg)
