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21 September Representatives of various international myositis groups and – organizations from, Australia, Canada, Czech Republic, Germany, Sweden, The Netherlands, United Kingdom and the United States of America have jointly decided to establish the World Myositis Day. This special day will be celebrated every year on September 21 from now on. On the WMD, special…
Rachel’s day always starts with a cocktail of medication and a good day is when she’s able to get out of bed and do some ‘normal’ daily living activities. At times, she is profoundly disabled. Days on end unable to move, sit up, stand, walk, shower or change clothes, hold a spoon to eat, hold…
Rachel’s Story Rachel’s day always starts with a cocktail of medication and a good day is when she’s able to get out of bed and do some ‘normal’ daily living activities. At times, she is profoundly disabled. Days on end unable to move, sit up, stand, walk, shower or change clothes, hold a spoon to…
Daniel Macri will be attempting to break his own Australian Yoke record with a attempt to move 650kgs 4 meters. This event will take place on Sunday the 28th of August before the start of South West Strongman’s Judgement day event at South West Strength Gym, U2/1 Beddingfield, Street Davenport, WA 6230 Daniel Macri is an accomplished…
Well, what an amazing month we have had, for Myositis Awareness. Thank you to all those that participated in getting the word out there. Download PDF
Most Myositis patients are at risk of falling. They cannot get up from the floor, may have trouble getting out of any chair; have difficulty with even a few steps; have very weak shoulders and grip; have swallowing or serious lung issues, and will not tolerate normal repetitive exercise.
My Journey. I was a happily retired 69 year old woman in around September 2019. My husband and I had just finished a half lap of Australia, from Victoria, through South Australia to the Northern Territory, then across to Western Australia and down the west coast, across the Nullarbor and home to Victoria. I was…
Everyone’s experience of grief or loss is unique. You might experience all kinds of difficult and at times overwhelming emotions, and you might sometimes wonder if the sadness will ever end. This is a normal reaction to loss. Find Out More
Living with or experiencing a chronic illness can result in many adjustments and changes, such as loss of independence and not being able to do all the active things you used to do or usually enjoy. Anxiety and depression are common in people with chronic physical illness. Find Out More
Matching your exercises to the strength of your musclesMuscle weakness in several muscle groups, is the hallmark of myositis. To help gauge any changes in your muscle function, routine monitoring of muscle strength is most likely performed every time you visit your specialist. Without sophisticated testing equipment, the most common method of assessing your individual…
I never thought in my wildest dreams that I would be in a wheelchair.
