Wheelchair Accessible Vehicles
Unlisted
Congratulations and thanks to Val Dempsey
Congratulations and thanks to Val Dempsey, the current Senior Australian of the Year. Great to see you recognised for your tireless volunteer work for over 40 years with St. Johns Ambulance. Val is also our past President and lives with Polymyositis and Interstitial Lung Disease. She works hard to raise awareness for Myositis and even…
SA Meetings
A special lunch to celebrate MAA’s 20th Anniversary and Myositis Awareness Month Wednesday May 10, 2023 at 12.30 – 2.30pm at The Goody, 75 Goodwood Rd, Goodwood SA A private room has been reserved. Buy your own lunch and MAA will provide a birthday cake to share with coffee. Numbers are required in advance so…
WA Meetings
PERTH See the note below about a special Family & Friends gathering on Sunday 7 May 2023. The WA group typically have quarterly informal social gatherings over lunch from noon on the first Wednesday of March, June, September and December at The Herdy, 33 Herdsman Parade, Wembly, The venue is accessible and has plenty of…
QLD Meetings
BRISBANE 25 May 2023 at 10am-12pm – Celebrating MAA’s 20th Anniversary and Myositis Awareness Month with cake at morning tea. Chermside Library, Meeting Room 3, Cnr Kittyhawke Dve & Hamilton Rd, Chermside HERVEY BAY A special fundraising event in celebration of MAA’s 20th Anniversary and Myositis Awareness Month in May. 26 May, 2023 at 9.30am…
Vic Meetings
Melbourne – East (Mulgrave) Celebrate the 20th Anniversary of MAA and Myositis Awareness Month 2 May, 2023 for lunch at 12 midday. Mulgrave Country Club Cnr of Wellington Rd and Jells Rd, MULGRAVE Contact: mail@myositis.org.au with any questions. Melbourne – West (Ascot Vale) 15 May 2023 for lunch at 12 midday Venue to be confirmed….
A movie called Father Stu
A movie called Father Stu was released in Australia on 12 May 2022. Check out this link: The movie stars Mark Wahlberg, Mel Gibson and Jacki Weaver and is directed by Mel Gibson‘s partner Rosalind Ross. The film follows the true life of Father Stuart Long, a boxer turned Catholic priest suffering from IBM. Please spread the word…
Tracy’s Journey – IBM
Sporadic Inclusion Body Myositis At the end of 2016, I was changing insurance companies and the new company sent me for blood tests. When the results came back, they immediately said: “we are not going to cover you, your CK levels are too high”. What the heck are CK levels, I wondered? I went off…
![Gadgets, Aids and Tips to Simplify Our Lives [Updated Dec 2023]](https://myositis.org.au/wp-content/uploads/2022/04/Gadgets-Aidsr-768x495.jpg)
Gadgets, Aids and Tips to Simplify Our Lives [Updated Dec 2023]
Mobility & Transport STEERING SPINNER KNOB (also called suicide knob) Easy to attach and makes turning and parking effortless.Can buy online from $20 or through authorised dealer for $150 Note it is classed as a car modification and you require at least a letter from your doctor saying you require this equipment. HANDY BAR Brilliant…
Knee braces for people with IBM
For many people living with Inclusion Body Myositis (IBM), falls are an all-too-common consequence of the disease. A study in the UK in 2014 reported that 98% of people with IBM had fallen in the previous year1. For those over 65 years of age it was 100%. Whilst the majority of these falls didn’t result…
Val’s Journey – Polymyositis and Interstitial Lung Disease.
Val Dempsey. Everybody has a story that is significant in their lives and I don’t believe my story is any more significant than any other. But I do accept this is my personal moment and my experience, such as it is. I am grateful to have had a fairly healthy life with nothing outstanding happening…
Myositis Australia with Christine
A short video prepared for the May 2021 Myositis Summit hosted by The Myositis Association (USA) to introduce our Australian patient support group as a member of the World Myositis Coalition.
NSW Meetings
SYDNEY MAA’s 20th Anniversary and Myositis Awareness Month May 2023 lunch. Wednesday 24 May 2023 at 12 noon. Social Kitchen Restaurant Ryde Eastwood Leagues Club117 Rydale RdWest Ryde NSW 2114 Contact: mail@myositis.org.au with any queries CENTRAL COAST GROUP We meet on the 2nd Wednesday of the month at 10am for coffee/tea Lee Rowens Garden World, Gardenia…
MAY IS MYOSITIS AWARENESS MONTH
May 2022 was a very busy month of gatherings, Online educational sessions, Media releases and Myositis advocacy work. Check out our roundup in the May/June Keeping In Touch Newsletter on our Resources page. National Meetings for Members on Zoom May 2022 – date in first week to be confirmed. Our patron Prof Allan Sturgess, Rheumatologist will focus…