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Fact Sheets
PDF Fact Sheets available for download below: Write to us at if you have other Fact Sheets to share.
Why do I feel tired?
A common symptom in people with muscle weakness is muscle fatigue, where after just a smallamount of activity or exercise, the muscle feels too tired to work effectively. Why then do peoplewith muscle disease feel tired so often? Firstly, let’s look at how muscles work in a person with no muscle damage. Its important to…
What is Juvenile Dermatomyositis? Physiotherapy and the CMAS
Role of Physiotherapy and what is the CMAS.
Chronic physical illness,
anxiety and depression
Living with or experiencing a chronic illness can result in many adjustments and changes, such as loss of independence and not being able to do all the active things you used to do or usually enjoy. Anxiety and depression are common in people with chronic physical illness. Find Out More
Where are the treatments for the two million Australians with a rare disease?
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…
Robyn and Gordon Burnett discuss obtaining their Wheelchair Modified Vehicle
Robyn & Gordon discuss with the people from the Drive-able Podcast, their journey with obtaining a Wheelchair Modified Vehicle. Drive-able Podcast has a number of interesting videos here