Members Only – Zoom online meeting – Wednesday 18 November, 2020 at 2pm Daylight saving time Vic, NSW, ACT (1pm Qld, 1.30pm SA, 11am WA).

The meeting will be a Q & A session with expert doctors – Prof Merrilee Needham, Prof Stephen Reddel, Prof Allan Sturgess and researches Prof Carola Venuesa and Prof Matthew Cook.

Frances Colley will send an email with a link to the Zoom meeting. Email: if you have queries.


Shoalhaven and Wollongong Group 

Contact Anita on 0421314138 for details of the next meeting.



Monday 15 March 2021 10am -2pm (subject to Covid 19 restrictions)

Function Room (without steps and located near disabled toilets), Castle Hill RSL Club, 77 Castle St., Castle Hill.

Contact: Anita Chalmers (0421 314138),  or

The venue is disability access friendly and has ample parking.

Food availability and Cost to be confirmed.

More information to follow.

Central Coast Group – N.S.W.

Usually a monthly coffee/morning tea meeting is held on the 2nd Friday of the month around 10am. (Check with Sandra Chapman during Covid 19 restrictions.)

Lee Rowan’s Garden Centre

72 Pacific Highway, Ourimbah Ph 02 4362 2822

All family and friends are welcome.

Contact Sandra Chapman 0429 695 500 or email for further information.

Western Sydney

Next Meeting:

To be advised due to Covid 19 restrictions.

Windsor Country Club

51 McQuade Ave., South Windsor

Contact: Rhonda Wooderson on

Central West – N.S.W.

Contact Anita Chalmers for more information – 0421314138


Victorian Group Meetings – Mulgrave Country Club

Typically, a quarterly informal social gathering over lunch (from 12 noon) is held for the Victorian Group on the first Tuesday of March, June, September and December. Everyone is welcome.

The meetings for 2020 have been cancelled by the Mulgrave Country Club due to Covid 19.

A formal meeting structure is not followed and we sometimes have a guest speaker. We also pay for our own lunch which is ordered in the main dining area.

There’s parking underneath and around the building, although it can get very busy so arrive early.

Contact Christine Lowe on for further information.

If you live in regional areas, the following meetings may be of interest or convenient:

Western Group –  Moonee Ponds

Next meeting: TO BE ADVISED

The Legends Room

Moonee Valley Racecourse

Cnr Wilson St & Thomas St,

Moonee Ponds

Contact:  Christine Lowe on for information about the next get together.

Albury/Wodonga Group

 9 December 2020 luncheon:  Sports Bar & Grill at the Commercial Club, 618 Dean St., Albury (subject to Covid 19 restrictions).

Contact Marg Doherty on for details

Goulburn Valley

Members in this region may also wish to join the Albury/Wodonga group  – contact Marg Doherty on


Contact: or Elizabeth Carter ph 84478715.


Next meeting Wednesday 2 December, 2020 at The Herdy, Wembley from 12 noon.

Christmas lunch – details to be confirmed.

Contact: WA Coordinator Kim Armstrong-Wood or


Brisbane Group

Next Meeting:

To be be advised.

Chermside Library Meeting Rooms (Grd Floor)

There is free parking in the grounds with extra parking downstairs with lift access to the ground floor The Library is on the corner of Hamilton Rd and Kittyhawk St, Chermside. Vehicle entry is via Kittyhawk St.

Contact:  Mary Woods on or Anita on 0421314138 for more details.

Bay Area Group:

Dates and venue for meetings to be confirmed. (Hervey Bay area)

Regional Co-Ordinator: Robert Anderson

At this stage for further information contact  Secretary Anita on 0421 314138  or if you are interested in being part of the group.


If you live in the areas of  ACT or Port Macquarie and wish to be involved with a regional group, please contact Secretary ANITA (mobile 0421 314 138) or

Myositis Awareness

Myositis Awareness Month is in May.

Everyone is encouraged to use social and local media to build awareness for the disease particularly with medical practitioners.