Some stories from our members

Ron’s Journey – IBM

Posted on
I used to play football and was known for my running speed but, at 43 years old I discovered I couldn’t run. That was in the mid 1990s.  Progressively over a few years I realised that I was losing strength. In 1998, I bought a pushbike to try to improve my quads. I would ride…
Read More Ron’s Journey – IBM

Jill’s Journey – IBM

Posted on
I first noticed the weakness in my right arm in 2015.  Neurologists did tests and thought the problem came from my spine and I even went to see a back surgeon who then sent me back to neurology.  After many more tests I was told I had motor neurone disease and had between 6 months…
Read More Jill’s Journey – IBM

Christie’s Journey – Antisynthetase Syndrome with Interstitial Lung Disease and Polymyositis

Posted on
My Myositis story began around Christmas of 2019, when I was 37 years old. I was visiting my in-laws in Bega, and we were surrounded by bushfire smoke. For the first time ever I struggled to walk from the car to the shops without sitting down. I put it down to the smoke but my…
Read More Christie’s Journey – Antisynthetase Syndrome with Interstitial Lung Disease and Polymyositis

Patient S’s Journey – Antisynthetase Syndrome, Interstitial Lung Disease, Polymyositis, Dermatomyositis

Posted on
Patient S – My journey started July 2013 when I was 37 years old. I already had Fibromyalgia. I was diagnosed with that in 1997 and managed that without medication. I worked full time with doing an office job which I travelled to by train. Then walked two city blocks. I began to notice that…
Read More Patient S’s Journey – Antisynthetase Syndrome, Interstitial Lung Disease, Polymyositis, Dermatomyositis

Share Your Story

If you would like to submit your personal story or are interested in being interviewed by MAA please complete the form below. We will contact you if we require any additional information.