We invite people with IBM to please follow this link to have your say in the Living with IBM experience survey.
By completing this survey you will be helping to inform the construction of best practice guidelines for IBM, being developed by an international team that includes patients with IBM and professionals with expertise in IBM across several countries. This effort is led by Drs Michael Rose and Katherine Jones and is funded by the French Muscular Dystrophy Association (AFM).
Australia is one of a selected group of countries invited to participate in the survey. Your responses will be anonymous and pooled. The Myositis Association Australia will be informed when the results of this survey will be published and we will let our members know where to locate the information. The closing date for completing this survey is Monday 22nd December 2014. We thank you in advance.