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Myo News

Jill’s Journey – IBM

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I first noticed the weakness in my right arm in 2015.  Neurologists did tests and thought the problem came from my spine and I even went to see a back surgeon who then sent me back to neurology.  After many more tests I was told I had motor neurone disease and had between 6 months…
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Christie’s Journey – Antisynthetase Syndrome with Interstitial Lung Disease and Polymyositis

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My Myositis story began around Christmas of 2019, when I was 37 years old. I was visiting my in-laws in Bega, and we were surrounded by bushfire smoke. For the first time ever I struggled to walk from the car to the shops without sitting down. I put it down to the smoke but my…
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Patient S’s Journey – Antisynthetase Syndrome, Interstitial Lung Disease, Polymyositis, Dermatomyositis

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Patient S – My journey started July 2013 when I was 37 years old. I already had Fibromyalgia. I was diagnosed with that in 1997 and managed that without medication. I worked full time with doing an office job which I travelled to by train. Then walked two city blocks. I began to notice that…
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Myositis Association Australia

The Myositis Association – Australia Inc is a registered charity, run by volunteers, who have Myositis.
We are here to support and advocate for you, whether you live with Myositis or you are a carer, family member, or friend.
Our goal is to help more people keep in touch, share their experiences and learn practical ways to manage their condition.
We also work to raise awareness of Myositis and to support Australian-based research looking into ways to prevent and treat the disease as well as improving the quality of life for those living with Myositis.

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Myo Journeys

While every person’s experience of Myositis is different, sharing stories helps those on a similar journey realise they are not alone. You’re never alone with us.

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What is Myositis?

Myositis is a group of rare conditions where the body’s immune system turns against itself and destroys healthy muscle instead of building new muscle tissue.
Over time, Myositis can cause significant muscle loss with comparable decline in strength, dexterity and mobility. In extreme cases, Myositis can be fatal when the heart and lung muscles are involved.

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Connect

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Get Support

Meet others who know what life is like with Myositis, at one of our group events, conferences or over the phone for a confidential chat.

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Know More

Learn more about Myositis and stay up-to-date with the latest health management tips and information on research and clinical trials.

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Get Involved

Help fund more Myositis research and support our education, awareness and advocacy work.

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Keep up to date with current news, events and fundraising opportunities!

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