Moving for Myositis – Fundraiser
at Newcastle Marathon, April 21st 2024
Guess who’s hitting the pavement for Myositis?
It’s me Kate Croker! I’m training to run my first marathon on April 21st in Newcastle. But there’s more to this run than just miles – I’m on a mission to raise awareness and funding for the Myositis Association Australia.
Mum (Anne Croker) has been facing a challenging journey since 2015. She was diagnosed with Inclusion Body Myositis (IBM) after wrestling with symptoms for over three years until her diagnosis.
Inclusion Body Myositis is a form of Myositis, which is a rare inflammatory degenerative muscle disease. The ‘body destroys its own muscles’. Symptoms usually begin after the age of 50, more frequently in men than in women. There is no cure for IBM, nor is there a standard course of treatment.
For more information, I encourage you to check out Myositis Association Australia https://myositis.org.au and Moving for Myositis https://www.eventcreate.com/e/movingformyositis
Please join me in supporting the research for Inclusion Body Myositis.
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Mums Story
n her early 40s, my mum began a journey that would alter the course of her life. Slowly, she experienced weakness and overwhelming fatigue, to the point of having to stop work. As she humorously put it, “chairs, stairs, and toilet seats became my worst enemies.”
Sadly, as is common with many struggling with uncommon illnesses, the path to a diagnosis was long and arduous. Specialists often dismissed her descriptions and physical symptoms, leaving her questioning if it was all in her ‘head.’ She faced challenges like frequent falls, fatigue, climbing up and down stairs, difficulty with daily activities, and numbness down her arms and legs. Shockingly, a neurologist in Wagga advised, “go home and do squats.”