Myo News and Events

Myositis month presented an opportunity to reflect

LAST month was dedicated to raising awareness of a progressive, currently incurable and poorly treated group of rare conditions commonly known as Myositis. Myositis is the term used to describe inflammation of the muscles, and has a number of different forms. The majority suffer from Inclusion Body Myositis (IBM) for which there is no cure…
Read More Myositis month presented an opportunity to reflect

Learning to Live with the unexpected

When you graduate high school, you ask yourself the question: “What’s next?” That uncertainty of adulthood is scary—yet exciting. For me, though, it sometimes feels like the “What’s next?” was decided for me. In July 2023, I decided to take a gap year and work in Queenstown, New Zealand. When I first arrived, my bright-eyed,…
Read More Learning to Live with the unexpected

Living the Research: Exploring What Truly matters to Myositis Patients

This is a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized Medicine Centre in Murdoch University, Australia. Kevin lives with IBM and conducted this patient-led research study to understand the priorities of those living with myositis and their care partners. This research and survey were partly funded…
Read More Living the Research: Exploring What Truly matters to Myositis Patients

Myositis month presented an opportunity to reflect

LAST month was dedicated to raising awareness of a progressive, currently incurable and poorly treated group of rare conditions commonly known as Myositis. Myositis is the term used to describe inflammation of the muscles, and has a number of different forms. The majority suffer from Inclusion Body Myositis (IBM) for which there is no cure…
Read More Myositis month presented an opportunity to reflect

Learning to Live with the unexpected

When you graduate high school, you ask yourself the question: “What’s next?” That uncertainty of adulthood is scary—yet exciting. For me, though, it sometimes feels like the “What’s next?” was decided for me. In July 2023, I decided to take a gap year and work in Queenstown, New Zealand. When I first arrived, my bright-eyed,…
Read More Learning to Live with the unexpected

Living the Research: Exploring What Truly matters to Myositis Patients

This is a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized Medicine Centre in Murdoch University, Australia. Kevin lives with IBM and conducted this patient-led research study to understand the priorities of those living with myositis and their care partners. This research and survey were partly funded…
Read More Living the Research: Exploring What Truly matters to Myositis Patients

Myositis Association Australia

The Myositis Association – Australia Inc is a registered charity, run by volunteers, who have Myositis.
We are here to support and advocate for you, whether you live with Myositis or you are a carer, family member, or friend.
Our goal is to help more people keep in touch, share their experiences and learn practical ways to manage their condition.
We also work to raise awareness of Myositis and to support Australian-based research looking into ways to prevent and treat the disease as well as improving the quality of life for those living with Myositis.

We have partnered with AJS Gifts & Laser engraving
to deliver Merchandise on behalf of the association!

Keep up to date with current news, events and fundraising opportunities!