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    • Get Involved
      Your support will enable our volunteer-led organisation to help fund research and continue our education, awareness and advocacy work for people living with Myositis.
    • Donate
      As a supporter, your donations help give hope. Our objectives are to raise funds for Australian-based Myositis research projects and continue our support and advocacy work.
    • Fundraise
      Raise money your way by taking part in an event or creating an event. You’ll be helping our volunteer-led organisation fund more research and support people who have been impacted by Myositis.
    • Volunteer
      Give your time and volunteer with us. Volunteers like you are the heart of our organisation.
  • News & EventsExpand
    • News
      Stay up to date with the latest Myositis research news and Association updates.
    • Events
      Connect to a network of support at one of our many regular events across Australia. Lunches, raffles, movie nights, garden parties, golf days, anything to raise funds for Myositis research.
    • Media Releases
      Read more about our latest media releases
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IBM

Home » IBM
Determining patient and carer priorities in Inclusion Body Myositis a patient-led research study
Mental Health | News | Subscriber Only

Determining patient and carer priorities in Inclusion Body Myositis a patient-led research study

Hours March 13, 2025March 19, 2025

Read More Determining patient and carer priorities in Inclusion Body Myositis a patient-led research studyContinue

Carol’s Journey – IBM
Myo Journeys

Carol’s Journey – IBM

Hours March 1, 2025March 21, 2025

I’m a busy and relatively healthy 69 year old living on the Sunshine Coast. My husband and I have shared a very happy life together since we were 16 and 18 years of age. We live an ideal lifestyle. Our home is a wonderful apartment with ocean views and we have our 2 fantastic children…

Read More Carol’s Journey – IBMContinue

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  • Home
  • About
    • About MAA
      Find out about The Myositis Association Australia
    • Committee
      The Myositis Association Australia
    • Sponsors
      of The Myositis Association Australia
  • Myositis
    • About Myositis –
      Find out more about Myositis
      • Inclusion Body Myositis
      • Polymyositis
      • Dermatomyositis
      • Overlap Myositis
      • Immune-Mediated Necrotizing Myopathies
      • Juvenile Myositis
      • Necrotizing Myositis / Fasciitis
      • Antisynthetase Syndrome
      • Orbital Myositis
    • Our Resource Hub
      Members Area
    • Myo Journeys
      Some of our members stories
    • Current Research
      Find out more about current research
    • For Health Professionals
      Information for health professionals
  • Get Support
    • Get Support
      Contact us to talk to someone for general advice or assistance.
    • Info Line
      Contact us to talk to someone for general advice or assistance.
    • Myo Journeys
      Some of our members stories
    • Share Your Story
      If you would like to submit your personal story
    • Become a Member
      Join us and connect to a strong network of support wherever you are in Australia.
    • Events
      Meet others who know what life is like with Myositis at one of our group events, online learning sessions or conferences.
    • Find a Health Professional
      For the assistance of our members
    • Mental Health
    • Help for our Carers
  • Membership
    • Membership
      Register to become a Myo Member
    • Become a Member
      Access info new treatments, clinical trials and studies.
    • Member Benefits
      Learn more about the range of membership benefits available by joining the MAA
    • Members Area
      Login to access member benefits including the Resource Hub
    • Renew Now
      Renewal and payment submission form for existing Myositis Association Australia members.
  • Resource Hub
  • Get Involved
    • Get Involved
      Your support will enable our volunteer-led organisation to help fund research and continue our education, awareness and advocacy work for people living with Myositis.
    • Donate
      As a supporter, your donations help give hope. Our objectives are to raise funds for Australian-based Myositis research projects and continue our support and advocacy work.
    • Fundraise
      Raise money your way by taking part in an event or creating an event. You’ll be helping our volunteer-led organisation fund more research and support people who have been impacted by Myositis.
    • Volunteer
      Give your time and volunteer with us. Volunteers like you are the heart of our organisation.
  • News & Events
    • News
      Stay up to date with the latest Myositis research news and Association updates.
    • Events
      Connect to a network of support at one of our many regular events across Australia. Lunches, raffles, movie nights, garden parties, golf days, anything to raise funds for Myositis research.
    • Media Releases
      Read more about our latest media releases
  • Contact
Search