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World Myositis Day Resources
World Myositis Day had its foundations in the USA some years ago. Over the last few years, there’s been a collaborative effort by groups around the world: from USA, UK, Netherlands, Germany, Sweden, Norway, Czech Republic, France, Poland, India and Australia to recognise World Myositis Day on 21st September. World Myositis Day 2025, observed on…
May is Myositis Awareness Month
Globally this month is dedicated to raising awareness of this progressive, currently incurable and poorly treated group of rare conditions. This is a time to come together for patients and carers battling this disease, as well as an opportunity to educate the public on this group of extremely rare conditions. Nationwide, Myositis patients, their families…
May is Myositis Awareness Month
Globally this month is dedicated to raising awareness of this progressive, currently incurable debilitating condition. Nationwide, Myositis patients and their families are recognising May as International Myositis Awareness Month. This is a time to come together for patients and carers battling this disease, as well as an opportunity to educate the public on this group…
Meet Val Dempsey, Dame of Grace in The Most Venerable Order of the Hospital of St John of Jerusalem
On 22nd of April at Government House, the Governor General, His Excellency General the Honourable David John Hurley AC DSC (Retd) bestowed the order of Dame of Grace in The Most Venerable Order of the Hospital of St John of Jerusalem to Val. Val’s family were in attendance to see her receive, the award was…
3RD NATIONAL MYOSITIS CONFERENCE 2019
SUMMARY ADELAIDE MAY 6-8, 2019 The Association’s 3rd National Conference was well attended by 112 Myositis patientsand carers. A very full and intensive program was enthusiastically received.The speakers were outstanding and our Association is so grateful for their expertise,passion for Myositis, commitment to patient support, and willingness to travel longdistances. The topics provided a strong…
Raising awareness for Myositis amongst GPs and Allied Health works.
Nov 2020 A video to raise awareness for Myositis amongst GPs and Allied Health workers, has been produced by Griffith Film School and stars Myositis patients and Dr Robert Henderson Neurologist, Brisbane.
