If you would like to submit your personal story please complete the form below. We will contact you if we require any additional information.
Click here to view the personal stories published to date.

It doesn’t matter if you are living with a rare disease, are a carer, clinician, researcher or however else you’re involved in the rare disease sector.

Your Details

Please enter your contact details, so we can give you proper credit for your personal story.

Please share your personal story below.

Please submit your guest blog posts by using the fields below.You may like to include:Your diagnosis story; How your rare disease impacts your daily life; and what services/care/support would help to increase your quality of life.When sharing your story, please refrain from mentioning doctors/specialist's names or hospitals.
When sharing your story, please refrain from mentioning doctors/specialist's names or hospitals.
Click or drag a file to this area to upload.
Please ensure your photo is high resolution (it is clear and not pixelated).
By submitting your story, you certify that it is an original work and you give The Myositis Association Australia consent to use the work and images contained in the file. This includes posting your story on the The Myositis Association Australia website, our social media channels and in our monthly newsletter. RVA will contact you directly if we wish to use your story for any other purpose. Please note that all stories are proofread and may be edited in-line with MAA’s Style Guide - if any further changes are made to what was originally submitted, RVA will be in touch prior to publishing your story. You can choose to withdraw your story at any time. If your story has already been published online and you’d like your story and associated image to be removed, please reach out directly via email: contact@myositis.org.au