Dan Macri Yoke Record Attempt
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Dan Macri Yoke Record Attempt

Daniel Macri will be attempting to break his own Australian Yoke record with a attempt to move 650kgs 4 meters. This event will take place on Sunday the 28th of August before the start of South West Strongman’s Judgement day event at South West Strength Gym,  U2/1 Beddingfield,  Street Davenport, WA 6230 Daniel Macri is an accomplished…

A movie called Father Stu
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A movie called Father Stu

A movie called Father Stu was released in Australia on 12 May 2022.  Check out this link: The movie stars Mark Wahlberg, Mel Gibson and Jacki Weaver and is directed by Mel Gibson‘s partner Rosalind Ross. The film follows the true life of Father Stuart Long, a boxer turned Catholic priest suffering from IBM.  Please spread the word…

MAY IS MYOSITIS AWARENESS MONTH
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MAY IS MYOSITIS AWARENESS MONTH

May 2022 was a very busy month of gatherings, Online educational sessions, Media releases and Myositis advocacy work. Check out our roundup in the May/June Keeping In Touch Newsletter on our Resources page. National Meetings for Members on Zoom May 2022 – date in first week to be confirmed. Our patron Prof Allan Sturgess, Rheumatologist will focus…

Where are the treatments for the two million Australians with a rare disease?
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Where are the treatments for the two million Australians with a rare disease?

Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low?   Christine Lowe –…

Congratulations Anita Chalmers OAM

Congratulations Anita Chalmers OAM

Our founding member of the Myositis Association Australia, Anita Chalmers, was recognised as part of the 2018 Australia Day honours with an OAM for her volunteer work for Myositis. Once diagnosed with Polymyositis in 1999, her volunteer activities in the Myositis Association began and soon extended across Australia and internationally.  She forged strong ties with the US Myositis Association. leading to access to US…