Join us and connect to a strong network of support wherever you are in Australia.

Myo News and Events

Myositis Discovery Program Live and Local recap

Posted in , ,
Recently, the Myositis Discovery Programme (based in Perth) went “Live & Local” on a research road trip across Australia, with events in Adelaide, Brisbane, Melbourne, Bendigo, Sydney, the Central Coast, and Canberra. Thank you again to everyone that joined us and showed their support! We hope the experience was just as valuable to you as…
Read More Myositis Discovery Program Live and Local recap

World Myositis Day Resources

Posted in ,
World Myositis Day had its foundations in the USA some years ago. Over the last few years, there’s been a collaborative effort by groups around the world: from USA, UK, Netherlands, Germany, Sweden, Norway, Czech Republic, France, Poland, India and Australia to recognise World Myositis Day on 21st September. World Myositis Day 2025, observed on…
Read More World Myositis Day Resources

Myositis Discovery Program Live and Local recap

Posted in , ,
Recently, the Myositis Discovery Programme (based in Perth) went “Live & Local” on a research road trip across Australia, with events in Adelaide, Brisbane, Melbourne, Bendigo, Sydney, the Central Coast, and Canberra. Thank you again to everyone that joined us and showed their support! We hope the experience was just as valuable to you as…
Read More Myositis Discovery Program Live and Local recap

World Myositis Day Resources

Posted in ,
World Myositis Day had its foundations in the USA some years ago. Over the last few years, there’s been a collaborative effort by groups around the world: from USA, UK, Netherlands, Germany, Sweden, Norway, Czech Republic, France, Poland, India and Australia to recognise World Myositis Day on 21st September. World Myositis Day 2025, observed on…
Read More World Myositis Day Resources

Myositis Association Australia

The Myositis Association – Australia Inc is a registered charity, run by volunteers, who have Myositis.
We are here to support and advocate for you, whether you live with Myositis or you are a carer, family member, or friend.
Our goal is to help more people keep in touch, share their experiences and learn practical ways to manage their condition.
We also work to raise awareness of Myositis and to support Australian-based research looking into ways to prevent and treat the disease as well as improving the quality of life for those living with Myositis.

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Myo Journeys

While every person’s experience of Myositis is different, sharing stories helps those on a similar journey realise they are not alone. You’re never alone with us.

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What is Myositis?

Myositis is a group of rare conditions where the body’s immune system turns against itself and destroys healthy muscle instead of building new muscle tissue.
Over time, Myositis can cause significant muscle loss with comparable decline in strength, dexterity and mobility. In extreme cases, Myositis can be fatal when the heart and lung muscles are involved.

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Connect

Join us and connect to a strong network of support wherever you are in Australia.

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Get Support

Meet others who know what life is like with Myositis, at one of our group events, conferences or over the phone for a confidential chat.

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Know More

Learn more about Myositis and stay up-to-date with the latest health management tips and information on research and clinical trials.

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Get Involved

Help fund more Myositis research and support our education, awareness and advocacy work.

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Keep up to date with current news, events and fundraising opportunities!

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