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Myo News and Events

AMAZING NEWS! The World Myositis Day – WMD – was founded!

Posted in News & Events
21 September Representatives of various international myositis groups and – organizations from, Australia, Canada, Czech Republic, Germany, Sweden, The Netherlands, United Kingdom and the United States of America have jointly decided to establish the World Myositis Day. This special day will be celebrated every year on September 21 from now on. On the WMD, special…
Read More AMAZING NEWS! The World Myositis Day – WMD – was founded!

Rachel’s Story

Posted in Myo Journeys
Rachel’s day always starts with a cocktail of medication and a good day is when she’s able to get out of bed and do some ‘normal’ daily living activities. At times, she is profoundly disabled. Days on end unable to move, sit up, stand, walk, shower or change clothes, hold a spoon to eat, hold…
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Myositis Association Australia

The Myositis Association – Australia Inc is a registered charity, run by volunteers, who have Myositis.
We are here to support and advocate for you, whether you live with Myositis or you are a carer, family member, or friend.
Our goal is to help more people keep in touch, share their experiences and learn practical ways to manage their condition.
We also work to raise awareness of Myositis and to support Australian-based research looking into ways to prevent and treat the disease as well as improving the quality of life for those living with Myositis.

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Myo Journeys

While every person’s experience of Myositis is different, sharing stories helps those on a similar journey realise they are not alone. You’re never alone with us.

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What is Myositis?

Myositis is a group of rare conditions where the body’s immune system turns against itself and destroys healthy muscle instead of building new muscle tissue.
Over time, Myositis can cause significant muscle loss with comparable decline in strength, dexterity and mobility. In extreme cases, Myositis can be fatal when the heart and lung muscles are involved.

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Connect

Join us and connect to a strong network of support wherever you are in Australia.

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Get Support

Meet others who know what life is like with Myositis, at one of our group events, conferences or over the phone for a confidential chat.

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Know More

Learn more about Myositis and stay up-to-date with the latest health management tips and information on research and clinical trials.

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Get Involved

Help fund more Myositis research and support our education, awareness and advocacy work.

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We have partnered with AJS Gifts & Laser engraving
to deliver Merchandise on behalf of the association!

Shop for Merch at ASJ Gifts

Keep up to date with current news, events and fundraising opportunities!

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