Join us and connect to a strong network of support wherever you are in Australia.

Myo News

The Art of Antibodies – Dr Thomas Khoo

Posted in Informative Videos, News & Events

We were very pleased to have a guest speaker, Dr Thomas Khoo, a rheumatologist and researcher (affiliated with the Royal Adelaide Hospital, Flinders Medical Centre. Manchester Myositis Research Group and a PhD candidate at the University of Adelaide) whose work focuses on inflammatory myopathies and myositis-specific antibodies (MSAs) join us following our 2026 Annual General Meeting….

My Myositis Journey

Posted in Myo Journeys, News & Events

Being diagnosed with a rare and chronic illness can turn life upside down, particularly when the diagnosis comes after months of uncertainty, unanswered questions and declining health. In this deeply personal account, one of our members shares their journey with Immune-Mediated Necrotising Myopathy (IMNM), a rare form of myositis, from the first unexplained symptoms and…

Planning For The Future

Posted in News & Events, Useful Information

Why Planning for the Future? Living with myositis can bring uncertainty, but planning ahead can provide reassurance, control and peace of mind.Planning for the future is about making sure your wishes are known, your loved ones are supported, and important decisions have already been considered if they are ever needed.

Australian Governments’ Acknowledge World Myositis Day.

Posted in News

The Myositis Association – Australia undertakes various activities aiming at raising awareness of Myositis in the community. To mark World Myositis Day the MAA wrote to the office of the Prime Minister and each of the State and Territory leaders asking them to acknowledge World Myositis Day. As Myositis is a rare disease, it is…

The Art of Antibodies – Dr Thomas Khoo
Posted in Informative Videos, News & Events
We were very pleased to have a guest speaker, Dr Thomas Khoo, a rheumatologist and researcher (affiliated with the Royal Adelaide Hospital, Flinders Medical Centre. Manchester Myositis Research Group and a PhD candidate at the University of Adelaide) whose work focuses on inflammatory myopathies and myositis-specific antibodies (MSAs) join us following our 2026 Annual General Meeting….
Read More The Art of Antibodies – Dr Thomas Khoo
My Myositis Journey
Posted in Myo Journeys, News & Events
Being diagnosed with a rare and chronic illness can turn life upside down, particularly when the diagnosis comes after months of uncertainty, unanswered questions and declining health. In this deeply personal account, one of our members shares their journey with Immune-Mediated Necrotising Myopathy (IMNM), a rare form of myositis, from the first unexplained symptoms and…
Read More My Myositis Journey
IMNM, Myositis
Planning For The Future
Posted in News & Events, Useful Information
Why Planning for the Future? Living with myositis can bring uncertainty, but planning ahead can provide reassurance, control and peace of mind.Planning for the future is about making sure your wishes are known, your loved ones are supported, and important decisions have already been considered if they are ever needed.
Read More Planning For The Future
Assisted Dying, end of live, Future, Planning, VAD
Australian Governments’ Acknowledge World Myositis Day.
Posted in News
The Myositis Association – Australia undertakes various activities aiming at raising awareness of Myositis in the community. To mark World Myositis Day the MAA wrote to the office of the Prime Minister and each of the State and Territory leaders asking them to acknowledge World Myositis Day. As Myositis is a rare disease, it is…
Read More Australian Governments’ Acknowledge World Myositis Day.

Myositis Association Australia

The Myositis Association – Australia Inc is a registered charity, run by volunteers, who have Myositis.
We are here to support and advocate for you, whether you live with Myositis or you are a carer, family member, or friend.
Our goal is to help more people keep in touch, share their experiences and learn practical ways to manage their condition.
We also work to raise awareness of Myositis and to support Australian-based research looking into ways to prevent and treat the disease as well as improving the quality of life for those living with Myositis.

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Myo Journeys

While every person’s experience of Myositis is different, sharing stories helps those on a similar journey realise they are not alone. You’re never alone with us.

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What is Myositis?

Myositis is a group of rare conditions where the body’s immune system turns against itself and destroys healthy muscle instead of building new muscle tissue.
Over time, Myositis can cause significant muscle loss with comparable decline in strength, dexterity and mobility. In extreme cases, Myositis can be fatal when the heart and lung muscles are involved.

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Connect

Join us and connect to a strong network of support wherever you are in Australia.

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Get Support

Meet others who know what life is like with Myositis, at one of our group events, conferences or over the phone for a confidential chat.

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