Myositis Association Australia

The Myositis Association – Australia Inc is a registered charity, run by volunteers, who have Myositis.
We are here to support and advocate for you, whether you live with Myositis or you are a carer, family member, or friend.
Our goal is to help more people keep in touch, share their experiences and learn practical ways to manage their condition.
We also work to raise awareness of Myositis and to support Australian-based research looking into ways to prevent and treat the disease as well as improving the quality of life for those living with Myositis.

Keep up to date with current news, events and fundraising opportunities!

Myo News and Events

Rachel’s Story

Rachel’s day always starts with a cocktail of medication and a good day is when she’s able to get out of bed and do some ‘normal’ daily living activities. At times, she is profoundly disabled. Days on end unable to move, sit up, stand, walk, shower or change clothes, hold a spoon to eat, hold…
Read More Rachel’s Story

Help Matt to raise awareness of Myositis through offering to have his quite long hair cut making the evening into a “hair-razing” fundraising opportunity!