Myo News

CamRARE Emergency Passport (Information Document/Card) – A very useful resource – UPDATE

Since this information was published in December, MAA has now partnered with CamRARE and there is now a customised version of the rare patient passport available for download. Please do not distribute the passport file as CamRARE monitor downloads so they can understand and report on the reach of their work. The CamRARE ‘This is…
Read More CamRARE Emergency Passport (Information Document/Card) – A very useful resource – UPDATE

Myositis Association Australia

The Myositis Association – Australia Inc is a registered charity, run by volunteers, who have Myositis.
We are here to support and advocate for you, whether you live with Myositis or you are a carer, family member, or friend.
Our goal is to help more people keep in touch, share their experiences and learn practical ways to manage their condition.
We also work to raise awareness of Myositis and to support Australian-based research looking into ways to prevent and treat the disease as well as improving the quality of life for those living with Myositis.

Keep up to date with current news, events and fundraising opportunities!