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Myo News

The Global Conference on Myositis (GCOM) March 2026 – Lisbon

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This leading international clinical care and research Myositis conference is held biannually. Clinicians, scientists, patients and pharmaceutical/equipment companies from around the globe were present.Attendance by Australian researchers in Lisbon was impacted by the conflict in the Middle East. Fortunately, online presentations could be made and some Australian researchers also managed to attend by travelling through…
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How To Prepare Yourself for Residential High Care

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Graeme Eggins is a retired foreign correspondent and magazine publisher has Inclusion Body Myositis (IBM). Please Note: Government policy is in a state of flux, and some of the requirement may change in future. He has kindly provided this detailed guide for use when considering the move to Residential High Care. Graeme lives in high…
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Myositis Association Australia

The Myositis Association – Australia Inc is a registered charity, run by volunteers, who have Myositis.
We are here to support and advocate for you, whether you live with Myositis or you are a carer, family member, or friend.
Our goal is to help more people keep in touch, share their experiences and learn practical ways to manage their condition.
We also work to raise awareness of Myositis and to support Australian-based research looking into ways to prevent and treat the disease as well as improving the quality of life for those living with Myositis.

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Myo Journeys

While every person’s experience of Myositis is different, sharing stories helps those on a similar journey realise they are not alone. You’re never alone with us.

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What is Myositis?

Myositis is a group of rare conditions where the body’s immune system turns against itself and destroys healthy muscle instead of building new muscle tissue.
Over time, Myositis can cause significant muscle loss with comparable decline in strength, dexterity and mobility. In extreme cases, Myositis can be fatal when the heart and lung muscles are involved.

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Meet others who know what life is like with Myositis, at one of our group events, conferences or over the phone for a confidential chat.

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Know More

Learn more about Myositis and stay up-to-date with the latest health management tips and information on research and clinical trials.

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Get Involved

Help fund more Myositis research and support our education, awareness and advocacy work.

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Keep up to date with current news, events and fundraising opportunities!

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