Note: Ron has generously shared his original MyoJourney below. Now, three years later, he has provided an update on his journey. While some readers may find the progression of Ron’s IBM (Inclusion Body Myositis) somewhat distressing, this is his personal story. Admirably, Ron continues to maintain a positive outlook and is committed to sharing his…
LAST month was dedicated to raising awareness of a progressive, currently incurable and poorly treated group of rare conditions commonly known as Myositis. Myositis is the term used to describe inflammation of the muscles, and has a number of different forms. The majority suffer from Inclusion Body Myositis (IBM) for which there is no cure…
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I’m a busy and relatively healthy 69 year old living on the Sunshine Coast. My husband and I have shared a very happy life together since we were 16 and 18 years of age. We live an ideal lifestyle. Our home is a wonderful apartment with ocean views and we have our 2 fantastic children…
