Damian’s Journey – IBM
I never thought in my wildest dreams that I would be in a wheelchair.
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It is said that stress plays a large part in auto-immune disease. There were three stressors in my life – the death of my Father, the death of my first dog, and a bad diet. My DM kicked in immediately after Dad died – I was having a swim the day after his funeral, and…
Carol’s Journey – IBM
I’m a busy and relatively healthy 69 year old living on the Sunshine Coast. My husband and I have shared a very happy life together since we were 16 and 18 years of age. We live an ideal lifestyle. Our home is a wonderful apartment with ocean views and we have our 2 fantastic children…
I am a Civil War
Dr Jennifer Mowbray, an Emergency Physician, shares her experience as a patient now dealing with a diagnosis of Immune‐Mediated Necrotising Myositis. Jennifer has also kindly shared her story she recorded while decreasing her doses of prednisolone. Read Jenny’s blog here
Ron’s Journey IBM 2022 – 2025
Note: Ron has generously shared his original MyoJourney below. Now, three years later, he has provided an update on his journey. While some readers may find the progression of Ron’s IBM (Inclusion Body Myositis) somewhat distressing, this is his personal story. Admirably, Ron continues to maintain a positive outlook and is committed to sharing his…
Patient R’s Journey – Necrotizing Myositis
It all began when I was nineteen years old. I had become very tired and suffered from headaches almost every day. I was skipping university, waking up in the afternoon and staying in bed all day. One night I was sitting in the car and felt pain in my left leg, mainly between the crease…
Patient D’s Journey – IBM
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