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Discussion of Changes to the NDIS
Stephen Toole, a Local Area Coordinator from the Brotherhood of St Laurence, a community partner to NDIS, answers a range of member questions relating to recent changes to the NDIS. This video was recorded on 4th April 2025. The slides Stephen refers to in his presentation are available here This video is not to be…
What is Juvenile Dermatomyositis: Looking Ahead
For families with a child with juvenile dermatomyositis, looking toward the future and hope.
Where are the treatments for the two million Australians with a rare disease?
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…
May is Myositis Awareness Month
Paintings by Jo Morris (dec 2022) and music by Lachy Beckett. Both Jo and Lachy survived JDM having developed it as very young children. Sadly Jo died at age 31. She was a fearless and much loved advocate who worked hard to build awareness for Myositis.
Exercise Videos from the Myositis Discovery programme at the Perron Institute
Ian Cooper and the Team at the Perron Institute’s Myositis Discovery Programme in WA have put together 3 exercise videos designed to assist those with Myositis. Two of the videos focus on a range of hand exercises with the third video is a guide to exercising in water. Our thanks to the team, and in…
Renewing your membership
A short guide to assist you in renewing your yearly membership. Should you need to update your password, click here for instructions. Please let us know if you encounter any issues with the payment or receipt facilities wherever you’re located. We will work quickly to rectify any issues. Should you need any assistance with your…
