Some helpful videos featuring our members
We were very pleased to have a guest speaker, Dr Thomas Khoo, a rheumatologist and researcher (affiliated with the Royal Adelaide Hospital, Flinders Medical Centre. Manchester Myositis Research Group and a PhD candidate at the University of Adelaide) whose work focuses on inflammatory myopathies and myositis-specific antibodies (MSAs) join us following our 2026 Annual General Meeting….
Ian brings a wealth of physiotherapy experience form many years of practice and more recently Ian has been a key member of the Myositis Discovery Program and Inflammatory Myopathies Clinic at the Perron Institute in WA. UPDATE: Ian and the team from Myositis Discovery Programme, Murdoch University, Western Australia; and Perron Institute for Neurological and…
Ian Cooper and the Team at the Perron Institute’s Myositis Discovery Programme in WA have put together 3 exercise videos designed to assist those with Myositis. Two of the videos focus on a range of hand exercises with the third video is a guide to exercising in water. Our thanks to the team, and in…
Ilana Strous discusses the role of a Speech Pathologist and the supports available to Myositis members experiencing difficulty with Speech and/or Swallowing.
IBM – What your patients may not tell you Quick Case primer in IBM
Join Howard and Bronwyn from HMS Medical in Brisbane for their presentation of the IndeeLift PPU (People Picker Upper) Contact them on 1300 106 003 or This demonstration was presented to MAA members on 5th June. HMS Medical offer try before you buy. Details of IndeeLift agents in other states are available here.
A short guide to assist you in renewing your yearly membership. Should you need to update your password, click here for instructions. Please let us know if you encounter any issues with the payment or receipt facilities wherever you’re located. We will work quickly to rectify any issues. Should you need any assistance with your…
From a 2022 ZOOM meeting where David from Care Food Co discusses the range of textured modified pureed feeds available for those with swallowing difficulties (Dysphagia).
Myositis Meeting Presentation – Difficulties with Swallowing. 22nd May 2022
Stephen Toole, a Local Area Coordinator from the Brotherhood of St Laurence, a community partner to NDIS, answers a range of member questions relating to recent changes to the NDIS. This video was recorded on 4th April 2025. The slides Stephen refers to in his presentation are available here This video is not to be…
Following discussions at a number of Keeping In Touch meetings, members were asked to submit questions related to the recent changes to the NDIS. Stephen Toole, a Local Area Coordinator with the Brotherhood of St Laurence, who is a community partner with NDIS, joined us in a ZOOM meeting on 4th April 2025. A video…
Trish has a counselling background having worked as a social worker in hospitals and community health for 40 years. Her work included counselling for anxiety, depression, trauma and loss and grief both with individuals and with families. Trish is also our NSW Coordinator. Much of her experience in hospital settings was with people who had…
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Ian Cooper, Physiotherapist in the Myositis Discovery Programme (MDP) shares his thoughts and experiences from attending Global Conference on Myositis held in Pittsburgh, USA.
MAA Rare Voices Ambassador Lachy Beckett and MAA Secretary Anita Chalmers are interviewed by WIN TV.
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