Myositis is gaining awareness this May, with people advocating for better support.
MAA Rare Voices Ambassador Lachy Beckett and MAA Secretary Anita Chalmers are interviewed by WIN TV.
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Australian Governments’ Acknowledge World Myositis Day.
The Myositis Association – Australia undertakes various activities aiming at raising awareness of Myositis in the community. To mark World Myositis Day the MAA wrote to the office of the Prime Minister and each of the State and Territory leaders asking them to acknowledge World Myositis Day. As Myositis is a rare disease, it is…
What is Juvenile Dermatomyositis? Family Life and School
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Discussion of Changes to the NDIS
Stephen Toole, a Local Area Coordinator from the Brotherhood of St Laurence, a community partner to NDIS, answers a range of member questions relating to recent changes to the NDIS. This video was recorded on 4th April 2025. The slides Stephen refers to in his presentation are available here This video is not to be…
Living the Research: Exploring What Truly matters to Myositis Patients
This is a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized Medicine Centre in Murdoch University, Australia. Kevin lives with IBM and conducted this patient-led research study to understand the priorities of those living with myositis and their care partners. This research and survey were partly funded…
A typical pathway to a rare condition – Patient L
Why am I taking SO much longer to trudge up the hill to the railway station ? Why am I finding pulling down a whiteboard so much harder? Why are stairs getting to be difficult? Why am I having so much difficulty carrying equipment from room to room? Why have I pulled a muscle in…
