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Myositis is gaining awareness this May, with people advocating for better support.
MAA Rare Voices Ambassador Lachy Beckett and MAA Secretary Anita Chalmers are interviewed by WIN TV.
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A movie called Father Stu
A movie called Father Stu was released in Australia on 12 May 2022. Check out this link: The movie stars Mark Wahlberg, Mel Gibson and Jacki Weaver and is directed by Mel Gibson‘s partner Rosalind Ross. The film follows the true life of Father Stuart Long, a boxer turned Catholic priest suffering from IBM. Please spread the word…
May is Myositis Awareness Month
Paintings by Jo Morris (dec 2022) and music by Lachy Beckett. Both Jo and Lachy survived JDM having developed it as very young children. Sadly Jo died at age 31. She was a fearless and much loved advocate who worked hard to build awareness for Myositis.
Myositis Discovery Programme – Breathing exercises and Myositis
Myositis Discovery Programme – Breathing exercises and Myositis
Congratulations and thanks to Val Dempsey
Congratulations and thanks to Val Dempsey, the current Senior Australian of the Year. Great to see you recognised for your tireless volunteer work for over 40 years with St. Johns Ambulance. Val is also our past President and lives with Polymyositis and Interstitial Lung Disease. She works hard to raise awareness for Myositis and even…
Where are the treatments for the two million Australians with a rare disease?
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…
What is Myositis
About Myositis, what is Myositis? Video created with the support of Civic Solutions.