Dysphagia & Myositis: Dr Julia Maclean
Myositis Meeting Presentation – Difficulties with Swallowing. 22nd May 2022
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Ian Cooper, Physiotherapist in the Myositis Discovery Programme (MDP) shares his thoughts and experiences from attending Global Conference on Myositis held in Pittsburgh, USA.
A movie called Father Stu
A movie called Father Stu was released in Australia on 12 May 2022. Check out this link: The movie stars Mark Wahlberg, Mel Gibson and Jacki Weaver and is directed by Mel Gibson‘s partner Rosalind Ross. The film follows the true life of Father Stuart Long, a boxer turned Catholic priest suffering from IBM. Please spread the word…
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Discussion of Changes to the NDIS
Stephen Toole, a Local Area Coordinator from the Brotherhood of St Laurence, a community partner to NDIS, answers a range of member questions relating to recent changes to the NDIS. This video was recorded on 4th April 2025. The slides Stephen refers to in his presentation are available here This video is not to be…
What is Juvenile Dermatomyositis? Medication and Nutrition
Information on Medication and Nutrition for children with Juvenile Dermatomyositis.
What is Juvenile Dermatomyositis? A resource for patients and families
Chapter 1 of 6 about Juvenile Dermatomyositis.
May is Myositis Awareness Month
Paintings by Jo Morris (dec 2022) and music by Lachy Beckett. Both Jo and Lachy survived JDM having developed it as very young children. Sadly Jo died at age 31. She was a fearless and much loved advocate who worked hard to build awareness for Myositis.
