Pureed Food – A members experience
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CamRARE Emergency Passport (Information Document/Card) – A very useful resource – UPDATE
Since this information was published in December, MAA has now partnered with CamRARE and there is now a customised version of the rare patient passport available for download. Please do not distribute the passport file as CamRARE monitor downloads so they can understand and report on the reach of their work. The CamRARE ‘This is…
Ilana Strous discusses what a Speech Pathologist can offer those with Myositis
Ilana Strous discusses the role of a Speech Pathologist and the supports available to Myositis members experiencing difficulty with Speech and/or Swallowing.
Follow up from the Myositis Discovery Programme’s Live and Local Events
Thank you once again for your support of our Myositis Research Road trips this year. We finished up with our final session in Bunbury, WA. Over the 9 events, we had around 400 attendees, which is amazing! We are very grateful to all of our collaborators and colleagues who joined us as well. And of…
Can Breathing Exercises Help with Swallowing?
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Your patient has Myositis
Most Myositis patients are at risk of falling. They cannot get up from the floor, may have trouble getting out of any chair; have difficulty with even a few steps; have very weak shoulders and grip; have swallowing or serious lung issues, and will not tolerate normal repetitive exercise. Be patient and proceed slowly. Take…
Dysphagia & Nutritious Eating
From a 2022 ZOOM meeting where David from Care Food Co discusses the range of textured modified pureed feeds available for those with swallowing difficulties (Dysphagia).
NDIS Changes Q & A – Slides
Following discussions at a number of Keeping In Touch meetings, members were asked to submit questions related to the recent changes to the NDIS. Stephen Toole, a Local Area Coordinator with the Brotherhood of St Laurence, who is a community partner with NDIS, joined us in a ZOOM meeting on 4th April 2025. A video…
Hidden Disabilities – A member’s story
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Access to Public Facilities for people with a disability – Master Locksmith Access Key (MLAK)
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Applying for a Parking Permit
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Taxi Subsidy Schemes
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Robyn and Gordon Burnett discuss obtaining their Wheelchair Modified Vehicle
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Winter Foot Care Tips and Tricks
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Dysphagia quality of life – 3D food printing
Join Rebecca Smith, Speech Pathologist and PhD candidate who discusses her work studying The Impacts of Dysphagia on Quality of Life and the use of Printed Food. 8th Feb 2022
Wheelchair Accessible Vehicles
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Useful Information
This is to be a list of websites which you, our members have found useful such as: www.daru.org.au/resources/dsp-help-an-online-resource = Useful program to help applicants obtain a Centrelink Disability Support Pension www.myagedcare.gov.au= My Aged Care www.ndis.gov.au= National Disability Scheme www.facebook.com/groups/1328785650823913/?ref=share =Private Facebook page established by WA member Kerry M with helpful tips and suggestions for those…
