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Determining patient and carer priorities in Inclusion Body Myositis a patient-led research study
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Mobility Aids – Useful links
Myositis patients have particular needs in order to remain independent and mobile. Our members have supplied us with information about products and services they have found useful. Links to some relevant websites are listed below. A list of vehicles suitable for full conversion for wheelchairs is provided below. Please write to us at if you have…
Dysphagia quality of life – 3D food printing
Join Rebecca Smith, Speech Pathologist and PhD candidate who discusses her work studying The Impacts of Dysphagia on Quality of Life and the use of Printed Food. 8th Feb 2022
Knee braces for people with IBM
For many people living with Inclusion Body Myositis (IBM), falls are an all-too-common consequence of the disease. A study in the UK in 2014 reported that 98% of people with IBM had fallen in the previous year1. For those over 65 years of age it was 100%. Whilst the majority of these falls didn’t result…
Hidden Disabilities – A member’s story
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