What is Juvenile Dermatomyositis? Medication and Nutrition
Information on Medication and Nutrition for children with Juvenile Dermatomyositis.
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What is Juvenile Dermatomyositis: Looking Ahead
For families with a child with juvenile dermatomyositis, looking toward the future and hope.
May is Myositis Awareness Month
Paintings by Jo Morris (dec 2022) and music by Lachy Beckett. Both Jo and Lachy survived JDM having developed it as very young children. Sadly Jo died at age 31. She was a fearless and much loved advocate who worked hard to build awareness for Myositis.
Dysphagia & Myositis: Dr Julia Maclean
Myositis Meeting Presentation – Difficulties with Swallowing.
Win News Feature – Myositis Awareness in Australia
Lachy Beckett and Anita Chalmers featured on WIN News.
Where are the treatments for the two million Australians with a rare disease?
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…