Information for GP’s and other health professionals dealing with patients with IBM
IBM – What your patients may not tell you
Quick Case primer in IBM
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Myositis Discovery Programme – Breathing exercises and Myositis
Myositis Discovery Programme – Breathing exercises and Myositis
Where are the treatments for the two million Australians with a rare disease?
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…
Discussion of Changes to the NDIS
Stephen Toole, a Local Area Coordinator from the Brotherhood of St Laurence, a community partner to NDIS, answers a range of member questions relating to recent changes to the NDIS. This video was recorded on 4th April 2025. The slides Stephen refers to in his presentation are available here This video is not to be…
What is Juvenile Dermatomyositis? Family Life and School
Information about family Live and school for children with juvenile dermatomyositis and their families.
Assoc. Prof. Allan Sturgess – Patron of our Association. Q & A May 2022
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What is Juvenile Dermatomyositis? Medication and Nutrition
Information on Medication and Nutrition for children with Juvenile Dermatomyositis.
