Dan Macri Yoke Record Attempt
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Dan Macri Yoke Record Attempt

Daniel Macri will be attempting to break his own Australian Yoke record with a attempt to move 650kgs 4 meters. This event will take place on Sunday the 28th of August before the start of South West Strongman’s Judgement day event at South West Strength Gym,  U2/1 Beddingfield,  Street Davenport, WA 6230 Daniel Macri is an accomplished…

SA Meetings
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SA Meetings

Wednesday July 20, 2022 at 1.30 – 3.30pm Wednesday September 21, 2022 at 1.30 – 3.30pm Wednesday November 16, 2022 at 1.30 – 3.30pm Hawthorn Community Centre (Hall A) 5 Frimley Grove, Hawthorn Contact: mail@myositis.org.au with any questions.

WA Meetings
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WA Meetings

PERTH September 7, 2022 at 11.15am. The WA group have quarterly informal social gatherings over lunch on the first Wednesday of March, June, September and December at The Herdy, 33 Herdsman Parade, Wembly, The venue is accessible and has plenty of parking. Contact mail@myositis.org.au with any questions.

QLD Meetings
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QLD Meetings

BRISBANE 18 August, 2022 at 10am-12pm Chermside Library, Meeting Room 3, Cnr Kittyhawke Dve & Hamilton Rd, Chermside HERVEY BAY 29 July, 2022 at 11am Hervey Bay Golf Club Contact: mail@myositis.org.au with any questions.

Vic Meetings
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Vic Meetings

A Victoria wide lunch meeting has been booked for 18 October 2022 at noon to coincide with National Carers Week at the Mulgrave Country Club in the large Mulgrave Room. More details will follow after the winter Covid/Flu period settles. Small localised gatherings will occur where possible. Details will be added once organised. Contact: mail@myositis.org.au with…

A movie called Father Stu
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A movie called Father Stu

A movie called Father Stu was released in Australia on 12 May 2022.  Check out this link: The movie stars Mark Wahlberg, Mel Gibson and Jacki Weaver and is directed by Mel Gibson‘s partner Rosalind Ross. The film follows the true life of Father Stuart Long, a boxer turned Catholic priest suffering from IBM.  Please spread the word…

NSW Meetings 
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NSW Meetings 

SYDNEY Tuesday 18th October, 2022 at 12 Noon Castle Hill RSL Club, 77 Castle St, Castle Hill, NSW in recognition of Carers Week Up to date vaccination status required. Contact: mail@myositis.org.au with any queries CENTRAL COAST GROUP 2nd Wednesday of the month at 10am for coffee/tea Lee Rowens Garden World, Gardenia Cafe, 72 Pacific Hwy, Ourimbah…

MAY IS MYOSITIS AWARENESS MONTH
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MAY IS MYOSITIS AWARENESS MONTH

May 2022 was a very busy month of gatherings, Online educational sessions, Media releases and Myositis advocacy work. Check out our roundup in the May/June Keeping In Touch Newsletter on our Resources page. National Meetings for Members on Zoom May 2022 – date in first week to be confirmed. Our patron Prof Allan Sturgess, Rheumatologist will focus…

3RD NATIONAL MYOSITIS CONFERENCE 2019
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3RD NATIONAL MYOSITIS CONFERENCE 2019

SUMMARYADELAIDE MAY 6-8, 2019 The Association’s 3rd National Conference was well attended by 112 Myositis patientsand carers. A very full and intensive program was enthusiastically received.The speakers were outstanding and our Association is so grateful for their expertise,passion for Myositis, commitment to patient support, and willingness to travel longdistances. The topics provided a strong focus…

IST NATIONAL CONFERENCE REPORT 2013
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IST NATIONAL CONFERENCE REPORT 2013

10 Year Anniversary CONFERENCE REPORT – ADELAIDE 19 – 22 August, 2013 Monday Having met informally at registration and over drinks, our President, Trevor Neumann officially welcomed around 105 attendees, to the conference over dinner at the Arkaba Hotel. Special guests, A/Prof Alan Sturgess, Patron (Rheumatologist St George Hospital Sydney),  Bob Goldberg (TMA – Washington), Prof…

2ND NATIONAL CONFERENCE SUMMARY 2016
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2ND NATIONAL CONFERENCE SUMMARY 2016

2ND NATIONAL CONFERENCE SUMMARYWOLLONGONG 10 – 12 OCTOBER, 2016 The Association’s 2nd National Conference was hugely successful with almost 90 patientsand carers enjoying the beachside location of the Novotel North Beach hotel in Wollongong.The speakers were outstanding. The topics ranged across medical information on Myositisand autoimmune diseases, review of global research, exercise and falls prevention,swallowing…

Where are the treatments for the two million Australians with a rare disease?
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Where are the treatments for the two million Australians with a rare disease?

Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low?   Christine Lowe –…

Congratulations Anita Chalmers OAM

Congratulations Anita Chalmers OAM

Our founding member of the Myositis Association Australia, Anita Chalmers, was recognised as part of the 2018 Australia Day honours with an OAM for her volunteer work for Myositis. Once diagnosed with Polymyositis in 1999, her volunteer activities in the Myositis Association began and soon extended across Australia and internationally.  She forged strong ties with the US Myositis Association. leading to access to US…