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Determining patient and carer priorities in Inclusion Body Myositis a patient-led research study
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Renewing your membership
A short guide to assist you in renewing your yearly membership. Should you need to update your password, click here for instructions. Please let us know if you encounter any issues with the payment or receipt facilities wherever you’re located. We will work quickly to rectify any issues. Should you need any assistance with your…
CamRARE Emergency Passport (Information Document/Card) – A very useful resource – UPDATE
Since this information was published in December, MAA has now partnered with CamRARE and there is now a customised version of the rare patient passport available for download. Please do not distribute the passport file as CamRARE monitor downloads so they can understand and report on the reach of their work. The CamRARE ‘This is…
Myositis Discovery Program Live and Local recap
Recently, the Myositis Discovery Programme (based in Perth) went “Live & Local” on a research road trip across Australia, with events in Adelaide, Brisbane, Melbourne, Bendigo, Sydney, the Central Coast, and Canberra. Thank you again to everyone that joined us and showed their support! We hope the experience was just as valuable to you as…
Wheelchair Accessible Vehicles
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Leveraging the Shared Learning’s of the Rare Disease Sector – 2024 National Rare Disease Summit Workshop Outputs
Our President Christine Lowe has passed on the Workshop Outputs from the recent Rare Voices Australia Summit. Our Association was represented by Christine and our RVA ambassadors Lachy Beckett and Katie Alexander.
