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Myositis Discovery Programme – Breathing exercises and Myositis
Most Myositis patients are at risk of falling. They cannot get up from the floor, may have trouble getting out of any chair; have difficulty with even a few steps; have very weak shoulders and grip; have swallowing or serious lung issues, and will not tolerate normal repetitive exercise.
This is to be a list of websites which you, our members have found useful such as: www.daru.org.au/resources/dsp-help-an-online-resource = Useful program to help applicants obtain a Centrelink Disability Support Pension www.myagedcare.gov.au= My Aged Care www.ndis.gov.au= National Disability Scheme www.facebook.com/groups/1328785650823913/?ref=share =Private Facebook page established by WA member Kerry M with helpful tips and suggestions for those…
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…
