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Useful Information

This is to be a list of websites which you, our members have found useful such as:

  • Myositis information available on the website of Australian or overseas organisations,
  • drug research,
  • disability services and equipment.
  • Write to us at mail@myositis.org.au if you have sites to share.

www.daru.org.au/resources/dsp-help-an-online-resource = Useful program to help applicants obtain a Centrelink Disability Support Pension

www.myagedcare.gov.au= My Aged Care

www.ndis.gov.au= National Disability Scheme

www.facebook.com/groups/1328785650823913/?ref=share =Private Facebook page established by WA member Kerry M with helpful tips and suggestions for those seeking access to the NDIS

www.carergateway.gov.au= Carer Gateway

www.myositis.org =                                The Myositis Association (USA)

www.myositis.org.uk =                            Myositis UK

www.understandingmyositis.org = Myositis Support and Understanding

cureibm.org = CureIBM

www.hopkinsmyositis.org/myositis =       Johns Hopkins Myositis Centre (USA)

www.beyondblue.org.au =                        Mental Health – Beyond Blue

www.headtohealth.gov.au= Mental Health – Head To Health

www.blackdoginstitute.org.au= Mental Health – Black Dog Institute

www.hss.edu.condition-list_myositis.asp =    Hospital for Special Surgery (New York, USA)

www.rarediseases.org =                          National Organisation for Rare Diseases (NORD) USA

www.rarevoices.org.au =                         Rare Diseases in Australia

www.clinicaltrials.gov =                            Database of clinical trials in USA/globally

www.anzctr.org.au =                                Database of clinical trials in Australia and New Zealand

www.ann.org.au =                                   Australasian Neuromuscular Network

www.msk.org.au = Musculoskeletal Australia

www.lifetec.org.au =                                Lifetec Qld

www.ideas.org.au =                                 I.D.E.A.S. (Information on Disability and Education Awareness Services)

www.nds.org.au =                                   National Disability Services (AUS)

www.disabilityonline.org.au =                    Australia’s Disability Services Hub – Services, Aids, Jobs, Social, Travel Carer’s Help

www.insurancewith.com/travelling-with-a-medical-condition = Travel and insurance information (USA site)

www.webmd.com/diabetes/tips-traveling = Travel tips (USA site)

www.friendshipcircle.org/blog/2012/05/03/airports-and-special-needs-travel-a-complete-guide/(USA site)

www.findacarer.com.au =                         Database of carers

www.mda.org.au =                                  Muscular Dystrophy Australia (VIC)

www.mdnsw.org.au =                              Muscular Dystrophy (NSW)

www.mdqld.org.au =                                Muscular Dystrophy (QLD)

www.mdwa.org.au =                                Muscular Dystrophy (WA)

www.arthritisaustralia.com.au = Arthritis Australia

www.allergy.org.au =                               Australasian Society of Clinical Immunology and Allergy

https://youtube.com/watch?v=JahQ5K2OzAQ%3Ffeature%3Doembed

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