Living the Research: Exploring What Truly matters to Myositis Patients
This is a three-part series of articles from Dr. Kevin Austin, Adjunct Professor in the Health Futures Institute’s Personalized Medicine Centre in Murdoch University, Australia.
Kevin lives with IBM and conducted this patient-led research study to understand the priorities of those living with myositis and their care partners. This research and survey were partly funded by Us, The Myositis Association Australia.
These articles are re published with permission from the The Myositis Association (TMA) in the US.
| Part 1 Discovering Priorities The priorities and challenges for Australian IBM patients, carers, and families. Part 2 Coping with IBM How well they are coping (or not) with living and managing the risks and challenges they face on a day-to-day basis. Part 3 Help for coping with IBM With the help of some knowledgeable consultants, a small team of Australian IBM patients and carers who were interested in driving change, identified some interesting suggestions for improving your personal ability to cope, particularly with mental health. |
| Click to listen to a podcast that discusses this research project. |
