What is Juvenile Dermatomyositis? Physiotherapy and the CMAS
Role of Physiotherapy and what is the CMAS.
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What is Myositis
About Myositis, what is Myositis? Video created with the support of Civic Solutions.
Where are the treatments for the two million Australians with a rare disease?
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…
Dysphagia quality of life – 3D food printing
Join Rebecca Smith, Speech Pathologist and PhD candidate who discusses her work studying The Impacts of Dysphagia on Quality of Life and the use of Printed Food. 8th Feb 2022
Ilana Strous discusses what a Speech Pathologist can offer those with Myositis
Ilana Strous discusses the role of a Speech Pathologist and the supports available to Myositis members experiencing difficulty with Speech and/or Swallowing.
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Discussion of Changes to the NDIS
Stephen Toole, a Local Area Coordinator from the Brotherhood of St Laurence, a community partner to NDIS, answers a range of member questions relating to recent changes to the NDIS. This video was recorded on 4th April 2025. The slides Stephen refers to in his presentation are available here This video is not to be…
