The Australasian Neuromuscular Network (ANN) and Asian and Oceanian Myology Centre (AOMC) Joint Congress.
MAA members Kim Armstrong – Wood and Kerry Maclaurin attended and Kerry has kindly provided the following Conference Report.

MAA members Kim Armstrong – Wood and Kerry Maclaurin attended and Kerry has kindly provided the following Conference Report.

Globally this month is dedicated to raising awareness of this progressive, currently incurable debilitating condition. Nationwide, Myositis patients and their families are recognising May as International Myositis Awareness Month. This is a time to come together for patients and carers battling this disease, as well as an opportunity to educate the public on this group…

Globally this month is dedicated to raising awareness of this progressive, currently incurable and poorly treated group of rare conditions. This is a time to come together for patients and carers battling this disease, as well as an opportunity to educate the public on this group of extremely rare conditions. Nationwide, Myositis patients, their families…

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Our President Christine Lowe has passed on the Workshop Outputs from the recent Rare Voices Australia Summit. Our Association was represented by Christine and our RVA ambassadors Lachy Beckett and Katie Alexander.

Our founding member of the Myositis Association Australia, Anita Chalmers, was recognised as part of the 2018 Australia Day honours with an OAM for her volunteer work for Myositis. Once diagnosed with Polymyositis in 1999, her volunteer activities in the Myositis Association began and soon extended across Australia and internationally. She forged strong ties with the US Myositis Association. leading to access to US…

10 Year Anniversary CONFERENCE REPORT – ADELAIDE 19 – 22 August, 2013 Monday Having met informally at registration and over drinks, our President, Trevor Neumann officially welcomed around 105 attendees, to the conference over dinner at the Arkaba Hotel. Special guests, A/Prof Alan Sturgess, Patron (Rheumatologist St George Hospital Sydney), Bob Goldberg (TMA – Washington), Prof…