The Australasian Neuromuscular Network (ANN) and Asian and Oceanian Myology Centre (AOMC) Joint Congress.
MAA members Kim Armstrong – Wood and Kerry Maclaurin attended and Kerry has kindly provided the following Conference Report.

MAA members Kim Armstrong – Wood and Kerry Maclaurin attended and Kerry has kindly provided the following Conference Report.

Ian Cooper, Physiotherapist in the Myositis Discovery Programme (MDP) shares his thoughts and experiences from attending Global Conference on Myositis held in Pittsburgh, USA.

LAST month was dedicated to raising awareness of a progressive, currently incurable and poorly treated group of rare conditions commonly known as Myositis. Myositis is the term used to describe inflammation of the muscles, and has a number of different forms. The majority suffer from Inclusion Body Myositis (IBM) for which there is no cure…

Our founding member of the Myositis Association Australia, Anita Chalmers, was recognised as part of the 2018 Australia Day honours with an OAM for her volunteer work for Myositis. Once diagnosed with Polymyositis in 1999, her volunteer activities in the Myositis Association began and soon extended across Australia and internationally. She forged strong ties with the US Myositis Association. leading to access to US…

A movie called Father Stu was released in Australia on 12 May 2022. Check out this link: The movie stars Mark Wahlberg, Mel Gibson and Jacki Weaver and is directed by Mel Gibson‘s partner Rosalind Ross. The film follows the true life of Father Stuart Long, a boxer turned Catholic priest suffering from IBM. Please spread the word…

21 September Representatives of various international myositis groups and – organizations from, Australia, Canada, Czech Republic, Germany, Sweden, The Netherlands, United Kingdom and the United States of America have jointly decided to establish the World Myositis Day. This special day will be celebrated every year on September 21 from now on. On the WMD, special…

I regularly travel with my electric wheelchair and needed to get dangerous goods approval for the battery that powers the chair. I had to attend the special assistance help desk and seek dangerous goods approval for the battery – (quite an extensive process that is time consuming.) Tip – make sure you allow time for…