Graeme Eggins is a retired foreign correspondent and magazine publisher has Inclusion Body Myositis (IBM).
He has kindly provided this detailed guide for use when considering the move to Residential High Care.
Graeme lives in high care in the NSW Northern Rivers. Click on the graphic below for the full guide.
Why am I taking SO much longer to trudge up the hill to the railway station ? Why am I finding pulling down a whiteboard so much harder? Why are stairs getting to be difficult? Why am I having so much difficulty carrying equipment from room to room? Why have I pulled a muscle in…
Join Rebecca Smith, Speech Pathologist and PhD candidate who discusses her work studying The Impacts of Dysphagia on Quality of Life and the use of Printed Food. 8th Feb 2022
A movie called Father Stu was released in Australia on 12 May 2022. Check out this link: The movie stars Mark Wahlberg, Mel Gibson and Jacki Weaver and is directed by Mel Gibson‘s partner Rosalind Ross. The film follows the true life of Father Stuart Long, a boxer turned Catholic priest suffering from IBM. Please spread the word…
Rachel’s day always starts with a cocktail of medication and a good day is when she’s able to get out of bed and do some ‘normal’ daily living activities. At times, she is profoundly disabled. Days on end unable to move, sit up, stand, walk, shower or change clothes, hold a spoon to eat, hold…
Our founding member of the Myositis Association Australia, Anita Chalmers, was recognised as part of the 2018 Australia Day honours with an OAM for her volunteer work for Myositis. Once diagnosed with Polymyositis in 1999, her volunteer activities in the Myositis Association began and soon extended across Australia and internationally. She forged strong ties with the US Myositis Association. leading to access to US…
A special lunch to celebrate MAA’s 20th Anniversary and Myositis Awareness Month Wednesday May 10, 2023 at 12.30 – 2.30pm at The Goody, 75 Goodwood Rd, Goodwood SA A private room has been reserved. Buy your own lunch and MAA will provide a birthday cake to share with coffee. Numbers are required in advance so…
