Graeme Eggins is a retired foreign correspondent and magazine publisher has Inclusion Body Myositis (IBM).
Please Note: Government policy is in a state of flux, and some of the requirement may change in future.
He has kindly provided this detailed guide for use when considering the move to Residential High Care.
Graeme lives in high care in the NSW Northern Rivers. Click on the graphic below for the full guide.
This is to be a list of websites which you, our members have found useful such as: www.daru.org.au/resources/dsp-help-an-online-resource = Useful program to help applicants obtain a Centrelink Disability Support Pension www.myagedcare.gov.au= My Aged Care www.ndis.gov.au= National Disability Scheme www.facebook.com/groups/1328785650823913/?ref=share =Private Facebook page established by WA member Kerry M with helpful tips and suggestions for those…
MAA members Kim Armstrong – Wood and Kerry Maclaurin attended and Kerry has kindly provided the following Conference Report.
Patient S – My journey started July 2013 when I was 37 years old. I already had Fibromyalgia. I was diagnosed with that in 1997 and managed that without medication. I worked full time with doing an office job which I travelled to by train. Then walked two city blocks. I began to notice that…
![Gadgets, Aids and Tips to Simplify Our Lives [Updated Feb 2026]](https://myositis.org.au/wp-content/uploads/2022/04/Gadgets-Aidsr-768x495.jpg)
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Recently, the Myositis Discovery Programme (based in Perth) went “Live & Local” on a research road trip across Australia, with events in Adelaide, Brisbane, Melbourne, Bendigo, Sydney, the Central Coast, and Canberra. Thank you again to everyone that joined us and showed their support! We hope the experience was just as valuable to you as…
Note: Ron has generously shared his original MyoJourney below. Now, three years later, he has provided an update on his journey. While some readers may find the progression of Ron’s IBM (Inclusion Body Myositis) somewhat distressing, this is his personal story. Admirably, Ron continues to maintain a positive outlook and is committed to sharing his…
