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Myo Journeys | News | Videos
Myositis is gaining awareness this May, with people advocating for better support.
MAA Rare Voices Ambassador Lachy Beckett and MAA Secretary Anita Chalmers are interviewed by WIN TV. /www.facebook.com/watch/?v=464773856006052
What is Juvenile Dermatomyositis? Medication and Nutrition
Information on Medication and Nutrition for children with Juvenile Dermatomyositis.
Where are the treatments for the two million Australians with a rare disease?
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…
Robyn and Gordon Burnett discuss obtaining their Wheelchair Modified Vehicle
Robyn & Gordon discuss with the people from the Drive-able Podcast, their journey with obtaining a Wheelchair Modified Vehicle. Drive-able Podcast has a number of interesting videos here