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What is Juvenile Dermatomyositis? A resource for patients and families
Chapter 1 of 6 about Juvenile Dermatomyositis.
Trish Brown, ‘How to Build Our Resilience so that when Life gets Tough, we have reserves to draw on’
Trish has a counselling background having worked as a social worker in hospitals and community health for 40 years. Her work included counselling for anxiety, depression, trauma and loss and grief both with individuals and with families. Trish is also our NSW Coordinator. Much of her experience in hospital settings was with people who had…
Where are the treatments for the two million Australians with a rare disease?
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…
NDIS Changes Q & A – Slides
Following discussions at a number of Keeping In Touch meetings, members were asked to submit questions related to the recent changes to the NDIS. Stephen Toole, a Local Area Coordinator with the Brotherhood of St Laurence, who is a community partner with NDIS, joined us in a ZOOM meeting on 4th April 2025. A video…
What is Juvenile Dermatomyositis? Sun Awareness
Information about sun protection for children with juvenile dermatomyositis.