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A movie called Father Stu
A movie called Father Stu was released in Australia on 12 May 2022. Check out this link: The movie stars Mark Wahlberg, Mel Gibson and Jacki Weaver and is directed by Mel Gibson‘s partner Rosalind Ross. The film follows the true life of Father Stuart Long, a boxer turned Catholic priest suffering from IBM. Please spread the word…

Myositis is gaining awareness this May, with people advocating for better support.
MAA Rare Voices Ambassador Lachy Beckett and MAA Secretary Anita Chalmers are interviewed by WIN TV.

Dysphagia & Nutritious Eating
From a 2022 ZOOM meeting where David from Care Food Co discusses the range of textured modified pureed feeds available for those with swallowing difficulties (Dysphagia).

What is Juvenile Dermatomyositis? Medication and Nutrition
Information on Medication and Nutrition for children with Juvenile Dermatomyositis.

What is Juvenile Dermatomyositis: Looking Ahead
For families with a child with juvenile dermatomyositis, looking toward the future and hope.

Trish Brown, ‘How to Build Our Resilience so that when Life gets Tough, we have reserves to draw on’
Trish has a counselling background having worked as a social worker in hospitals and community health for 40 years. Her work included counselling for anxiety, depression, trauma and loss and grief both with individuals and with families. Trish is also our NSW Coordinator. Much of her experience in hospital settings was with people who had…






