
Similar Posts

Dr Jessica Day – Myositis Awareness Month 2022 – Research Initiatives Update
You must have a subscription to view this content.

Where are the treatments for the two million Australians with a rare disease?
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…


Information for GP’s and other health professionals dealing with patients with IBM
IBM – What your patients may not tell you Quick Case primer in IBM

NDIS Changes Q & A – Slides
Following discussions at a number of Keeping In Touch meetings, members were asked to submit questions related to the recent changes to the NDIS. Stephen Toole, a Local Area Coordinator with the Brotherhood of St Laurence, who is a community partner with NDIS, joined us in a ZOOM meeting on 4th April 2025. A video…

What is Juvenile Dermatomyositis: Looking Ahead
For families with a child with juvenile dermatomyositis, looking toward the future and hope.






