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Information on Medication and Nutrition for children with Juvenile Dermatomyositis.
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Information about family Live and school for children with juvenile dermatomyositis and their families.
What is Myositis
About Myositis, what is Myositis? Video created with the support of Civic Solutions.
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From a 2022 ZOOM meeting where David from Care Food Co discusses the range of textured modified pureed feeds available for those with swallowing difficulties (Dysphagia).
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Ian Cooper, Physiotherapist in the Myositis Discovery Programme (MDP) shares his thoughts and experiences from attending Global Conference on Myositis held in Pittsburgh, USA.
May is Myositis Awareness Month
Paintings by Jo Morris (dec 2022) and music by Lachy Beckett. Both Jo and Lachy survived JDM having developed it as very young children. Sadly Jo died at age 31. She was a fearless and much loved advocate who worked hard to build awareness for Myositis.
