What is Juvenile Dermatomyositis? Sun Awareness
Information about sun protection for children with juvenile dermatomyositis.
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Robyn and Gordon Burnett discuss obtaining their Wheelchair Modified Vehicle
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Dysphagia & Nutritious Eating
From a 2022 ZOOM meeting where David from Care Food Co discusses the range of textured modified pureed feeds available for those with swallowing difficulties (Dysphagia).
Ilana Strous discusses what a Speech Pathologist can offer those with Myositis
Ilana Strous discusses the role of a Speech Pathologist and the supports available to Myositis members experiencing difficulty with Speech and/or Swallowing.
What is Juvenile Dermatomyositis? A resource for patients and families
Chapter 1 of 6 about Juvenile Dermatomyositis.
Where are the treatments for the two million Australians with a rare disease?
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…
