The Myositis Discovery Programme is a research group led by Prof Merrilee Needham, based at Murdoch University and the Perron Institute. Our aim is to improve health and outcomes for patients by increasing our understanding of myositis and investigating potential new therapies.
Here is the latest Research Update.
LAST month was dedicated to raising awareness of a progressive, currently incurable and poorly treated group of rare conditions commonly known as Myositis. Myositis is the term used to describe inflammation of the muscles, and has a number of different forms. The majority suffer from Inclusion Body Myositis (IBM) for which there is no cure…
Rachel’s Story Rachel’s day always starts with a cocktail of medication and a good day is when she’s able to get out of bed and do some ‘normal’ daily living activities. At times, she is profoundly disabled. Days on end unable to move, sit up, stand, walk, shower or change clothes, hold a spoon to…
Geoff Corcoran from Victoria has put together this resource based upon his and experience of others when selecting a Power Wheelchair. It is intended to assist those with IBM to quickly get acquainted with many of the relevant issues when dealing with some of the practical challenges of living with IBM. It should help you to achieve…
Daniel Macri will be attempting to break his own Australian Yoke record with a attempt to move 650kgs 4 meters. This event will take place on Sunday the 28th of August before the start of South West Strongman’s Judgement day event at South West Strength Gym, U2/1 Beddingfield, Street Davenport, WA 6230 Daniel Macri is an accomplished…
Stephen Toole, a Local Area Coordinator from the Brotherhood of St Laurence, a community partner to NDIS, answers a range of member questions relating to recent changes to the NDIS. This video was recorded on 4th April 2025. The slides Stephen refers to in his presentation are available here This video is not to be…
