Dermatomyositis and Anti Synthetase Syndrome
Dermatomyositis and Anti Synthetase Syndrome
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Where are the treatments for the two million Australians with a rare disease?
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…
A movie called Father Stu
A movie called Father Stu was released in Australia on 12 May 2022. Check out this link: The movie stars Mark Wahlberg, Mel Gibson and Jacki Weaver and is directed by Mel Gibson‘s partner Rosalind Ross. The film follows the true life of Father Stuart Long, a boxer turned Catholic priest suffering from IBM. Please spread the word…
Dr Jessica Day – Myositis Awareness Month 2022 – Research Initiatives Update
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What is Juvenile Dermatomyositis: Looking Ahead
For families with a child with juvenile dermatomyositis, looking toward the future and hope.