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Myositis month presented an opportunity to reflect
LAST month was dedicated to raising awareness of a progressive, currently incurable and poorly treated group of rare conditions commonly known as Myositis. Myositis is the term used to describe inflammation of the muscles, and has a number of different forms. The majority suffer from Inclusion Body Myositis (IBM) for which there is no cure…
NSW Meetings
SYDNEY MAA’s 20th Anniversary and Myositis Awareness Month May 2023 lunch. Wednesday 24 May 2023 at 12 noon. Social Kitchen Restaurant Ryde Eastwood Leagues Club117 Rydale RdWest Ryde NSW 2114 Contact: with any queries CENTRAL COAST GROUP We meet on the 2nd Wednesday of the month at 10am for coffee/tea Lee Rowens Garden World, Gardenia…
What is Juvenile Dermatomyositis? Family Life and School
Information about family Live and school for children with juvenile dermatomyositis and their families.
Congratulations Anita Chalmers OAM
Our founding member of the Myositis Association Australia, Anita Chalmers, was recognised as part of the 2018 Australia Day honours with an OAM for her volunteer work for Myositis. Once diagnosed with Polymyositis in 1999, her volunteer activities in the Myositis Association began and soon extended across Australia and internationally. She forged strong ties with the US Myositis Association. leading to access to US…
Exercise Videos from the Myositis Discovery programme at the Perron Institute
Ian Cooper and the Team at the Perron Institute’s Myositis Discovery Programme in WA have put together 3 exercise videos designed to assist those with Myositis. Two of the videos focus on a range of hand exercises with the third video is a guide to exercising in water. Our thanks to the team, and in…
Dermatomyositis and Anti Synthetase Syndrome
Dermatomyositis and Anti Synthetase Syndrome
