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Ann’s Story
Ann Reynolds has a remarkably practical and positive approach to her recent diagnosis of myositis and is now doing all she can to learn about it and share her story. “It’s what I’ve been dealt with, I can’t I do anything about it, but knowing there is support helps;’ she said. Ann had been having…
Discussion of Changes to the NDIS
Stephen Toole, a Local Area Coordinator from the Brotherhood of St Laurence, a community partner to NDIS, answers a range of member questions relating to recent changes to the NDIS. This video was recorded on 4th April 2025. The slides Stephen refers to in his presentation are available here This video is not to be…
Win News Feature – Myositis Awareness in Australia
Lachy Beckett and Anita Chalmers featured on WIN News.
Raising awareness for Myositis amongst GPs and Allied Health works.
Nov 2020 A video to raise awareness for Myositis amongst GPs and Allied Health workers, has been produced by Griffith Film School and stars Myositis patients and Dr Robert Henderson Neurologist, Brisbane.
Myositis Discovery Programme Research Update – July 2026
The Myositis Discovery Programme is a research group led by Prof Merrilee Needham, based at Murdoch University and the Perron Institute. Our aim is to improve health and outcomes for patients by increasing our understanding of myositis and investigating potential new therapies. Here is the latest Research Update.
