Assoc. Prof. Allan Sturgess – Patron of our Association. Causes of Weakness May 2022
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Dysphagia quality of life – 3D food printing
Join Rebecca Smith, Speech Pathologist and PhD candidate who discusses her work studying The Impacts of Dysphagia on Quality of Life and the use of Printed Food. 8th Feb 2022
Wheelchair Accessible Vehicles
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A movie called Father Stu
A movie called Father Stu was released in Australia on 12 May 2022. Check out this link: The movie stars Mark Wahlberg, Mel Gibson and Jacki Weaver and is directed by Mel Gibson‘s partner Rosalind Ross. The film follows the true life of Father Stuart Long, a boxer turned Catholic priest suffering from IBM. Please spread the word…
Myositis Australia with Christine
A short video prepared for the May 2021 Myositis Summit hosted by The Myositis Association (USA) to introduce our Australian patient support group as a member of the World Myositis Coalition.
Where are the treatments for the two million Australians with a rare disease?
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…
CentroGlide Power Wheelchair
CentroGlide is the leading power wheelchair from Glide Above: Here’s a video of one of our IBMers on his Glide Wheelchair.
Dermatomyositis and Anti Synthetase Syndrome
Dermatomyositis and Anti Synthetase Syndrome
What is Myositis
About Myositis, what is Myositis? Video created with the support of Civic Solutions.
Myositis Discovery Programme – Breathing exercises and Myositis
Myositis Discovery Programme – Breathing exercises and Myositis
May is Myositis Awareness Month
Paintings by Jo Morris (dec 2022) and music by Lachy Beckett. Both Jo and Lachy survived JDM having developed it as very young children. Sadly Jo died at age 31. She was a fearless and much loved advocate who worked hard to build awareness for Myositis.
What is Juvenile Dermatomyositis: Looking Ahead
For families with a child with juvenile dermatomyositis, looking toward the future and hope.
What is Juvenile Dermatomyositis? A resource for patients and families
Chapter 1 of 6 about Juvenile Dermatomyositis.
What is Juvenile Dermatomyositis? Physiotherapy and the CMAS
Role of Physiotherapy and what is the CMAS.
What is Juvenile Dermatomyositis? Sun Awareness
Information about sun protection for children with juvenile dermatomyositis.
