Join us and connect to a strong network of support wherever you are in Australia.

Myo News

George Scott (dec) – IBM

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Myositis crept into my world…. George passed away in 2017. He was instrumental in establishing the Victorian Support group – he understood, he cared and he made a difference. In addition to his IBM George had a battle with skin cancer and a brain bleed. George would say to other Myositis patients to take special…
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3RD NATIONAL MYOSITIS CONFERENCE 2019

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SUMMARY ADELAIDE MAY 6-8, 2019 The Association’s 3rd National Conference was well attended by 112 Myositis patientsand carers. A very full and intensive program was enthusiastically received.The speakers were outstanding and our Association is so grateful for their expertise,passion for Myositis, commitment to patient support, and willingness to travel longdistances. The topics provided a strong…
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IST NATIONAL CONFERENCE REPORT 2013

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10 Year Anniversary CONFERENCE REPORT – ADELAIDE 19 – 22 August, 2013 Monday Having met informally at registration and over drinks, our President, Trevor Neumann officially welcomed around 105 attendees, to the conference over dinner at the Arkaba Hotel. Special guests, A/Prof Alan Sturgess, Patron (Rheumatologist St George Hospital Sydney),  Bob Goldberg (TMA – Washington), Prof…
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Where are the treatments for the two million Australians with a rare disease?

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Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low?   Christine Lowe –…
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Myositis Association Australia

The Myositis Association – Australia Inc is a registered charity, run by volunteers, who have Myositis.
We are here to support and advocate for you, whether you live with Myositis or you are a carer, family member, or friend.
Our goal is to help more people keep in touch, share their experiences and learn practical ways to manage their condition.
We also work to raise awareness of Myositis and to support Australian-based research looking into ways to prevent and treat the disease as well as improving the quality of life for those living with Myositis.

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Myo Journeys

While every person’s experience of Myositis is different, sharing stories helps those on a similar journey realise they are not alone. You’re never alone with us.

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What is Myositis?

Myositis is a group of rare conditions where the body’s immune system turns against itself and destroys healthy muscle instead of building new muscle tissue.
Over time, Myositis can cause significant muscle loss with comparable decline in strength, dexterity and mobility. In extreme cases, Myositis can be fatal when the heart and lung muscles are involved.

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Connect

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Get Support

Meet others who know what life is like with Myositis, at one of our group events, conferences or over the phone for a confidential chat.

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Know More

Learn more about Myositis and stay up-to-date with the latest health management tips and information on research and clinical trials.

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Get Involved

Help fund more Myositis research and support our education, awareness and advocacy work.

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Keep up to date with current news, events and fundraising opportunities!

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