Join us and connect to a strong network of support wherever you are in Australia.

Myo News and Events

Your patient has Myositis

Posted in , ,
Most Myositis patients are at risk of falling. They cannot get up from the floor, may have trouble getting out of any chair; have difficulty with even a few steps; have very weak shoulders and grip; have swallowing or serious lung issues, and will not tolerate normal repetitive exercise. Be patient and proceed slowly. Take…
Read More Your patient has Myositis

Myositis month presented an opportunity to reflect

Posted in ,
LAST month was dedicated to raising awareness of a progressive, currently incurable and poorly treated group of rare conditions commonly known as Myositis. Myositis is the term used to describe inflammation of the muscles, and has a number of different forms. The majority suffer from Inclusion Body Myositis (IBM) for which there is no cure…
Read More Myositis month presented an opportunity to reflect

Learning to Live with the unexpected

Posted in
When you graduate high school, you ask yourself the question: “What’s next?” That uncertainty of adulthood is scary—yet exciting. For me, though, it sometimes feels like the “What’s next?” was decided for me. In July 2023, I decided to take a gap year and work in Queenstown, New Zealand. When I first arrived, my bright-eyed,…
Read More Learning to Live with the unexpected

Myositis Association Australia

The Myositis Association – Australia Inc is a registered charity, run by volunteers, who have Myositis.
We are here to support and advocate for you, whether you live with Myositis or you are a carer, family member, or friend.
Our goal is to help more people keep in touch, share their experiences and learn practical ways to manage their condition.
We also work to raise awareness of Myositis and to support Australian-based research looking into ways to prevent and treat the disease as well as improving the quality of life for those living with Myositis.

Learn More

Myo Journeys

While every person’s experience of Myositis is different, sharing stories helps those on a similar journey realise they are not alone. You’re never alone with us.

Learn More
What is Myositis?

Myositis is a group of rare conditions where the body’s immune system turns against itself and destroys healthy muscle instead of building new muscle tissue.
Over time, Myositis can cause significant muscle loss with comparable decline in strength, dexterity and mobility. In extreme cases, Myositis can be fatal when the heart and lung muscles are involved.

Learn More
Connect

Join us and connect to a strong network of support wherever you are in Australia.

Learn More

Get Support

Meet others who know what life is like with Myositis, at one of our group events, conferences or over the phone for a confidential chat.

Learn More

Know More

Learn more about Myositis and stay up-to-date with the latest health management tips and information on research and clinical trials.

Learn More

Get Involved

Help fund more Myositis research and support our education, awareness and advocacy work.

Learn More

Keep up to date with current news, events and fundraising opportunities!

Find Out More