World Myositis Day Resources
Here are a range of downloadable resources for members to use on Social Media or other forums to promote World Myositis Day. There are 2 short videos, the World Myositis Day Logo and a press release.
Ilana Strous discusses what a Speech Pathologist can offer those with Myositis
Ilana Strous discusses the role of a Speech Pathologist and the supports available to Myositis members experiencing difficulty with Speech and/or Swallowing.
Robyn and Gordon Burnett discuss obtaining their Wheelchair Modified Vehicle
Robyn & Gordon discuss with the people from the Drive-able Podcast, their journey with obtaining a Wheelchair Modified Vehicle. Drive-able Podcast has a number of interesting videos here
Current State of Myositis Understanding. Ian Cooper from the Myositis Discovery Programme
Ian Cooper, Physiotherapist in the Myositis Discovery Programme (MDP) shares his thoughts and experiences from attending Global Conference on Myositis held in Pittsburgh, USA.
Support group offers hope for those living with myositis
Published in Shepparton News June 14, 2024 With incurable diseases such as myositis, taking care of one’s mind is most important. Having a solid support system of people who have been through something similar, who understand and can help you prepare, is a massive part of that. Myositis is a rare disease where the body’s…
Mental Health Resources
R U OK?: is a public health promotion charity that encourages people to stay connected and have conversations that can help others through difficult times in their lives. Our work focuses on building the motivation, confidence and skills of the help-giver – the person who can have a meaningful conversation with someone who is struggling…
‘Dame’ Val takes the challenge of myositis head on
Val Dempsey… “Somebody will walk over to you and say: ‘How are you today, Val?’ And likely if you tell them, they don’t ask again.” Photo: Katarina Lloyd Jones. Myositis refers to a group of rare, incurable and progressive conditions that sees the body’s immune system turn against itself, destroying healthy muscle in the process….
Ann’s Story
Ann Reynolds has a remarkably practical and positive approach to her recent diagnosis of myositis and is now doing all she can to learn about it and share her story. “It’s what I’ve been dealt with, I can’t I do anything about it, but knowing there is support helps;’ she said. Ann had been having…
Myo Journeys | News | Videos
Myositis is gaining awareness this May, with people advocating for better support.
MAA Rare Voices Ambassador Lachy Beckett and MAA Secretary Anita Chalmers are interviewed by WIN TV. /www.facebook.com/watch/?v=464773856006052
May is Myositis Awareness Month
Globally this month is dedicated to raising awareness of this progressive, currently incurable debilitating condition. Nationwide, Myositis patients and their families are recognising May as International Myositis Awareness Month. This is a time to come together for patients and carers battling this disease, as well as an opportunity to educate the public on this group…
Meet Val Dempsey, Dame of Grace in The Most Venerable Order of the Hospital of St John of Jerusalem
On 22nd of April at Government House, the Governor General, His Excellency General the Honourable David John Hurley AC DSC (Retd) bestowed the order of Dame of Grace in The Most Venerable Order of the Hospital of St John of Jerusalem to Val. Val’s family were in attendance to see her receive, the award was…