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A movie called Father Stu was released in Australia on 12 May 2022. Check out this link: The movie stars Mark Wahlberg, Mel Gibson and Jacki Weaver and is directed by Mel Gibson‘s partner Rosalind Ross. The film follows the true life of Father Stuart Long, a boxer turned Catholic priest suffering from IBM. Please spread the word…
SYDNEY MAA’s 20th Anniversary and Myositis Awareness Month May 2023 lunch. Wednesday 24 May 2023 at 12 noon. Social Kitchen Restaurant Ryde Eastwood Leagues Club117 Rydale RdWest Ryde NSW 2114 Contact: mail@myositis.org.au with any queries CENTRAL COAST GROUP We meet on the 2nd Wednesday of the month at 10am for coffee/tea Lee Rowens Garden World, Gardenia…
May 2022 was a very busy month of gatherings, Online educational sessions, Media releases and Myositis advocacy work. Check out our roundup in the May/June Keeping In Touch Newsletter on our Resources page. National Meetings for Members on Zoom May 2022 – date in first week to be confirmed. Our patron Prof Allan Sturgess, Rheumatologist will focus…
SUMMARY ADELAIDE MAY 6-8, 2019 The Association’s 3rd National Conference was well attended by 112 Myositis patientsand carers. A very full and intensive program was enthusiastically received.The speakers were outstanding and our Association is so grateful for their expertise,passion for Myositis, commitment to patient support, and willingness to travel longdistances. The topics provided a strong…
10 Year Anniversary CONFERENCE REPORT – ADELAIDE 19 – 22 August, 2013 Monday Having met informally at registration and over drinks, our President, Trevor Neumann officially welcomed around 105 attendees, to the conference over dinner at the Arkaba Hotel. Special guests, A/Prof Alan Sturgess, Patron (Rheumatologist St George Hospital Sydney), Bob Goldberg (TMA – Washington), Prof…
2ND NATIONAL CONFERENCE SUMMARYWOLLONGONG 10 – 12 OCTOBER, 2016 The Association’s 2nd National Conference was hugely successful with almost 90 patientsand carers enjoying the beachside location of the Novotel North Beach hotel in Wollongong.The speakers were outstanding. The topics ranged across medical information on Myositisand autoimmune diseases, review of global research, exercise and falls prevention,swallowing…
Sunday Extra with Julian Morrow It took Christine six years and many doctors visits before being diagnosed with Myositis – a rare muscle disease. Is genetic testing helping in the diagnosis of rare diseases? And what more can be done to develop therapies when the economic incentive for pharmaceutical companies is low? Christine Lowe –…
Nov 2020 A video to raise awareness for Myositis amongst GPs and Allied Health workers, has been produced by Griffith Film School and stars Myositis patients and Dr Robert Henderson Neurologist, Brisbane.
Our founding member of the Myositis Association Australia, Anita Chalmers, was recognised as part of the 2018 Australia Day honours with an OAM for her volunteer work for Myositis. Once diagnosed with Polymyositis in 1999, her volunteer activities in the Myositis Association began and soon extended across Australia and internationally. She forged strong ties with the US Myositis Association. leading to access to US…
CentroGlide is the leading power wheelchair from Glide Above: Here’s a video of one of our IBMers on his Glide Wheelchair.
